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Fackler Rebel
8th February 2012, 16:16
My arthritis is getting worse. So I have put my beloved 2000 XL1200 Sportster up for sale. Screaming Eagle air box, QD windshield, luggage rack, padded HD back rest, HD deluxe touring seat, highway pegs, V&H straighshots with the baffles, Kuriakyn, spelling?? extensions and mini-floorboards for the wife's short legs, saddle bags and the HD service manual and parts manual. I'll throw in helmets, chaps, too. 22,000 miles, lived indoors all her life. NEVER been dropped. Looks and drives like she is 5 years old 4,000 firm. If y'all know any send me a message and I'll answer with more contact info.

Reb

dwagar
8th February 2012, 16:37
Sorry to hear that, my wife has arthritis, it can be quite debilitating. Have you tried the biologics (eg Enbrel)?

Great deal on the bike, I'm sure it'll go to a good home.

AB,Frank
8th February 2012, 17:23
Darn....sorry to hear that...you need a dry climate

Have you ever seen this or heard about this product,I know some people that swear by it

http://www.sierrasil.com/

Old rider
8th February 2012, 18:01
My arthritis prevented me from riding for a couple years, I couldn't get my leg over the seat of my Goldwing and it was almost impossible to lift my right leg off the foot peg at stops. I bought my Sportster with the forward controls and that helped a great deal, reducing the angle of my hip joints and allowing me to just slide my foot back off the pegs at stops instead of lifting it up.

More importantly I started taking Glucosamine & Chondroitin pills every day. I went to a Arthritis seminar and met a guy there who got great results from them. The doctor putting on the seminar mentioned that about half of his patients get some improvement and they are cheap so he urges everyone to try it, no harm can come of it.

I have been taking it for about 6 months now. I have a lot less pain than I had before and I can walk up stairs with both legs about 90% of the time. Before I started taking the Glucosamine & Chondroitin I almost always had to use just my left leg to go up stairs. I don't take anything for pain, I am trying to not ruin my stomach. I would have to say I have seen a pretty good improvement in the last 6 months in my ability to do things. I could probably ride my Goldwing again.

If you haven't yet tried Glucosamine & Chondroitin I would urge you to do so, give it a couple of months and keep the bike if you improve. I have it in both hips and both shoulders. I still have pain but at least I can comb my hair. I used to have days that I couldn't get my hands up that high the pain was so intense.

I wish you the best of luck. Never give up looking for relief. I get mine at Sam's club, you might find them cheaper somewhere else, I have never shopped for them.

Oh and I see that I am almost 3 weeks older than you. :)

Rogster
8th February 2012, 20:59
Trike it!!!!

Bob F
8th February 2012, 22:06
Start rant:

My hands are worn out!

What I do to try and maintain:

Injections as often as the doctor will do them
Glucosamine & Chondroitin pills
Paraffin hot wax therapy
TENS stimulator
Voltaren gel
Try and keep my hands warm by wearing gloves when ever I can
Soft grips
Gene Mod (pre 2004 top tree on 2004+ Sporty) with rubber bushings (not the plastic ones)
Vibrators
Cry myself to sleep, wake up in pain, cry, go back to sleep.
Selling my scoot isn't an option.

Do you remember on Son's of Anarchy Clay's hand problem?
That's my life.
At least 5 years to go before I can retire BECAUSE OF THE COST OF HEALTH CARE!!!!!!!!!!!!!!!!!!!!!!

Why is the USA healthcare systems so broken??????????????????

Rant over:

I have other joints (most of them) than have problems but my hands are truly worn out.

Fackler Rebel
8th February 2012, 22:13
I've been to all kinds of doctors guys, mine is a degenerative one. I need to sell her so any help is appreciated. She is a deal at 4. Chaps, helmets, all the HD manuals.

Reb

Fackler Rebel
8th February 2012, 22:15
Because our government has failed us. It won't be fixed at the ballot box. How much money did we give Pakistan last year and what is this year's budget?

Reb

Bob F
8th February 2012, 22:21
Will a moderator move this to "riding with disabilities"?

I've been to all kinds of doctors guys, mine is a degenerative one

rheumatoid arthritis?
osteo arthritis?
gouty arthritis?
pseudo gout arthritis?

Do they Know?
Are they willing to guess?

Bob F
8th February 2012, 22:24
I subscribed to this thread.

Any insight will be appreciated.

HELP CECIL HELP!!!!!!!!!!!!!!!!!!!!!!!!!!!

Old rider
8th February 2012, 23:15
it sounds like both you guys have been through the health care mill. I have insurance that costs me around $1,000 a month for my wife and I. I spent $22,000 last year on health care counting the insurance premiums and there was nothing wrong with me, my wife had an infection that looked like mersa and smashed her big toe a little causing a couple visits to the emergency room. I should probably have both hips and both shoulders replaced but I will never be able to afford either the time off work or the cost. There has to be a better system than what we have in this country.

Bob F
8th February 2012, 23:56
My wife had a kidney transplant a decade ago. SO it looks looks like I'll have to work until I'm 70 for health care (10 MORE YEARS????????????????????) if Obama care dies, but my hands don't work any more. I've sacrificed by body/health for the "American Dream" Dream/nightmare? The tea Bag Party can bl0w me>

HELP CECIL HELP!!!!!!!!!!!!!!!!!!!!!!!!!!!

Bob F
9th February 2012, 00:09
[The tea Bag Party can bl0w me]

I don't use profanity but this is the exception!

Sorry!!!!!!!!!!!!!!!!!

Terp84Alum
9th February 2012, 00:18
I'm on a low dosage of Methotrexate that I take once a week and inject Humira every other Sunday. I'm basically symptom free. Find a good rheumatologist.

Bob F
9th February 2012, 00:22
Find a good rheumatologist.\

PM me!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! !!!!!!!!!!!!!!!!!!!!!

Old rider
9th February 2012, 02:35
My wife had a kidney transplant a decade ago. SO it looks looks like I'll have to work until I'm 70 for health care (10 MORE YEARS????????????????????) if Obama care dies, but my hands don't work any more. I've sacrificed by body/health for the "American Dream" Dream/nightmare? The tea Bag Party can bl0w me>

HELP CECIL HELP!!!!!!!!!!!!!!!!!!!!!!!!!!!

if Obama care doesn't die you might be forced to buy my insurance..you won't like it. I don't get much for my money.:doh I would rather see something else. Don't we deserve the same coverage as the people who take our money and spend it.:wonderlan

ozark
9th February 2012, 03:10
My arthritis is getting worse. So I have put my beloved 2000 XL1200 Sportster up for sale. Screaming Eagle air box, QD windshield, luggage rack, padded HD back rest, HD deluxe touring seat, highway pegs, V&H straighshots with the baffles, Kuriakyn, spelling?? extensions and mini-floorboards for the wife's short legs, saddle bags and the HD service manual and parts manual. I'll throw in helmets, chaps, too. 22,000 miles, lived indoors all her life. NEVER been dropped. Looks and drives like she is 5 years old 4,000 firm. If y'all know any send me a message and I'll answer with more contact info.

Reb

Really sad to hear. I have arthritis in various spots as a result of a misspent youth. I'm still riding and hope to continue as long as I can walk. Sometimes a few minor things can keep you on the road. A seat pad, bar adjustment and some padded gloves made a world of difference to me.

Maybe it's worth holding out till Spring and you will feel like giving it a shot for another season. :tour

All my best,

Ozark

Monkey55
9th February 2012, 06:32
My arthritis is getting worse. So I have put my beloved 2000 XL1200 Sportster up for sale. Screaming Eagle air box, QD windshield, luggage rack, padded HD back rest, HD deluxe touring seat, highway pegs, V&H straighshots with the baffles, Kuriakyn, spelling?? extensions and mini-floorboards for the wife's short legs, saddle bags and the HD service manual and parts manual. I'll throw in helmets, chaps, too. 22,000 miles, lived indoors all her life. NEVER been dropped. Looks and drives like she is 5 years old 4,000 firm. If y'all know any send me a message and I'll answer with more contact info.

Reb

I'm sorry to hear that. It sucks.

I've been thinking about writing my "Good Bye" thread because I'm pretty close to giving up my scoot too. My hands have been hurting me everyday, all day, since last November. I'm scheduled to see a Rheumatologist in a week or two. And I'm only 38 years old. :frownthre

Do what you have to do to feel comfortable. Some people are able to work through the pain and stiffness. But for me, I am wiped out if I go beyond a certain point.

Hang In There.
Elias

XLXR
9th February 2012, 07:10
I am going to join this club. Doctor said she has spent $1 million in tests and they still can't figure out what's wrong with me. "They" includes a long list of specialists.

Ricor Vibranators in the handle bars really reduced vibration and wrist pain. Air Hawk air cushion, and a couple extra inches of foam in the seat also helped.

I don't ride much these days because the aches and pains just don't go away.

williamv1203
9th February 2012, 07:42
All I can offer is for you to have a look here to see if you can find any solutions.
There is a forum link on the NABD homepage also.

http://www.nabd.org.uk

Jazbec
9th February 2012, 13:31
I've had arthritis for 34 years (since I was 25). I've had just about every kind of treatment there is, and am on bi-weekly Humira injections now, that are absolutely the most effective treatment I've had.

It's a life-long struggle. There's nothing that will cure it, but you have to fight through the pain or it will beat you. When I was in my 30s I got really depressed and gave up a lot of things that were important to me, including riding motorcycles, running, and playing guitar. Inactivity just makes the inflammation worse, though. I had some good advice from a rheumatologist, who suggested different sports that don't stress the joints, physiotherapy, etc., and now I'm back to a fairly active lifestyle that includes enjoying riding a Sportster. My sister ignored the advice (she got it about the same age I did), and she's in much worse shape than I am.

RickH
12th February 2012, 14:06
I have started to use Bi-flex and Advil for my arthritis symptoms and it seems to help quite a bit. Pain is less and the hands are usable.

883bob
12th February 2012, 14:18
Sorry to hear about your having to give up on riding. I have arthritis in my right knee. Sometime next winter I might be looking at a knee replacement. I can't use forward pegs because of the pain and mid's have been working for me. So I don't have that laid back look, I can live without it.

sportyblue
12th February 2012, 16:55
Sorry to hear how bad it is for you. As suggested, maybe some modifications will make riding still doable for you. Mine acts up in the winter terribly. And to make it even worse I injured a finger on my right hand last summer playing with my dog and first thing in the morning my right hand and especially that finger will not close. After several cups of coffee, time moving around, I can then close that hand pretty good but that one finger....it's ruined I guess.....just won't work exactly right. It's a hand full of Advil sometimes, at this point, to make everything work right. I have noticed the right hand acts up after a few hours of riding.

Matty
13th February 2012, 15:18
My arthritis is getting worse. So I have put my beloved 2000 XL1200 Sportster up for sale. Screaming Eagle air box, QD windshield, luggage rack, padded HD back rest, HD deluxe touring seat, highway pegs, V&H straighshots with the baffles, Kuriakyn, spelling?? extensions and mini-floorboards for the wife's short legs, saddle bags and the HD service manual and parts manual. I'll throw in helmets, chaps, too. 22,000 miles, lived indoors all her life. NEVER been dropped. Looks and drives like she is 5 years old 4,000 firm. If y'all know any send me a message and I'll answer with more contact info.

Reb

Reb,

As others have said, get a good rheumatologist. My arthritis came on suddenly and acutely about seven years ago. It affects my neck, back, hips and feet. It took a lot of x-rays, mri's and various chemical attempts to alleviate the pain. I was gobbling up vicodins like they were altoids. Various less expensive treatments didn't work and the insurance company finally approved Enbrel. Enbrel and Humera are biologics that work in the body to suppress your immune system. They are not drugs, but they are very expensive. These drug manufacturers do have payment assisstance programs if your insurance does provide coverage. They also have copay assist programs.

Dont give up on your treatment because it will only become more debilitating. I can say that two months after getting on Enbrel, I was able to go on a long range fishing trip and land a 150# yellowfin tuna. This is in comparison to hobbling with a cane when I got around at all.

Bob F
13th February 2012, 16:03
I tried Cymbalta but the side effects weren't worth the minimal relief.

Constipation; decreased sexual desire or ability; diarrhea; dizziness; drowsiness; dry mouth; headache; increased sweating; loss of appetite; nausea; sore throat; tiredness; trouble sleeping; vomiting; weakness.

83XLX
13th February 2012, 16:38
My arthritis is getting worse. So I have put my beloved 2000 XL1200 Sportster up for sale...
Sorry to hear that, man. We never did get hooked up for a ride...:(

Corpsvett
13th February 2012, 17:53
Very sorry to hear about your arthritis, wishing you the best.
Sure wish I had 4K, we could talk further.


Sent from my iPad2 using Tapatalk

wedge
13th February 2012, 18:41
[The tea Bag Party can bl0w me]

I don't use profanity but this is the exception!

Sorry!!!!!!!!!!!!!!!!!
Hi Bob. When the Tea Party gets done with you, they can come over to my place.

I have arthritis in the hands too, and after about 10 miles they just ache constantly. The reason that Obama care is only marginally going to help is because this congress is fighting every possible plan to improve it. So... No sense arguing about it with those who support the very system that is killing us, we need to get out and vote for a congress that will work with Obama and get the economy rolling as well as get us a single payer system like the VA or Medicare.

In the meantime, it's a matter of riding through the pain. I am good at shuting it out while on the road, but the other day I about tipped over coming to a stop at Newcombs Ranch. My hands were about frost bit, and I couldn't grab the front brake as fast as I thought I could. I wore gloves on the way back down the hill, like the rest of the Nancy's up there... :shhhh:o

Terp84Alum
13th February 2012, 19:46
I tried Cymbalta but the side effects weren't worth the minimal relief.

Cymbalta? That's an anti-depressant. That won't help your arthritis.

wedge
13th February 2012, 22:13
Cymbalta? That's an anti-depressant. That won't help your arthritis.
Arthritis is depressing.

ol38y
29th February 2012, 00:28
Reb,

As others have said, get a good rheumatologist. My arthritis came on suddenly and acutely about seven years ago. It affects my neck, back, hips and feet. It took a lot of x-rays, mri's and various chemical attempts to alleviate the pain. I was gobbling up vicodins like they were altoids. Various less expensive treatments didn't work and the insurance company finally approved Enbrel. Enbrel and Humera are biologics that work in the body to suppress your immune system. They are not drugs, but they are very expensive. These drug manufacturers do have payment assisstance programs if your insurance does provide coverage. They also have copay assist programs.

Dont give up on your treatment because it will only become more debilitating. I can say that two months after getting on Enbrel, I was able to go on a long range fishing trip and land a 150# yellowfin tuna. This is in comparison to hobbling with a cane when I got around at all.

Reb, this is very good advice. I've been on Enbrel for 3 years. Without it I couldn't ride or work for that matter. Enbrel also has a financial assistance program that in my circumstances pays $4000 a year against co-pays or needed supplies. Ask your Dr. to reccomend a good Rheumatoligist and make an appointment. You won't regret it.

khaskins
29th February 2012, 00:53
Cymbalta? That's an anti-depressant. That won't help your arthritis.

New indication is moderate chronic pain.

zakk1775
29th February 2012, 02:01
That sucks sorry to hear that

Bob F
7th March 2012, 21:01
Cymbalta? That's an anti-depressant. That won't help your arthritis.

It's now also listed for arthritis.

I've been on Enbrel for 3 years. Without it I couldn't ride or work for that matter.

My allergy doctor is afraid to let me try it. Doesn't want to kill me.

professir
8th March 2012, 23:06
You may also want to investigate Lyrica. I have cronic severe pain from neck fusion and elbow reconstruction. They tried it with me, but didnt work, so I am on Tramadol, Advil, Acetaminophen and 2 night meds to help bring the pain down a bit.

Don't give up!