View Full Version : XLF member's son needs our help!
bplinson 20th January 2008, 16:37 XLF Members please consider helping out Eli Matthews win his fight against cancer.
I am posting this for his father Paul Mathews who is an XLF member.
Please read about Eli below.
You can donate here:
http://main.acsevents.org/site/TR/RelayForLife/RelayForLifePennsylvaniaDivision?team_id=192101&pg=team&fr_id=7602
Or use the information below.
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Hi, you may not know me, but I’m Paul Matthews, known as Panther on the XL FORUM site. My wife is Ruth, and my son’s are Austin, and Eli. We live in Oxford, PA. Please take a moment and read this. I need your help to fight CANCER. I ask Bert if I could ask my fellow riders for help, and he granted me this Thanks Bert.
After spending all the time we have at the Childrens Hospital of Philadelphia I came to realize what it is I must do. I must help Fight this disease. When you walk the 3rd floor at (CHOP) as much as Ruth and I have you see all these wonderful children that need our help.
Watching my own son in that bed for all those days I know now what I must do. Please read the rest of this (message) to see what I'm up to.
I became involved in Relay for life because I had a few relatives that have passed away with cancer and now my sweet little boy also fights this terrible disease. The Relay for life is a 20-hour event to be held on May 16th starting at 4 p.m. and ending May 17th at noon.
This will be held at a local school track. My team ( The bELIeve Team ) will take turns walking around the track to raise money for cancer and the awareness of cancer. We want to show that cancer does not rest. We want to fight back against cancer, we want to honor cancer survivors, we want to honor my son Eli. We want to remember those we lost and most of all, we want to beat this deadly disease.
I invite you to sponsor the bELIeve team in this event. I have enclosed some information at the end of this e-mail regarding sponsorship & donations.
If you are willing to participate, you can make your check payable to.
Eli Matthews Cancer Fund
and send to
The Peoples Bank of Oxford
2196 Baltimore Pike
Oxford, PA 19363
You do not need an account number. I will have the bank write a cashiers check for the Relay when it's time.
IN THE RACE AGAINST CANCER, THERE IS NO FINISH LINE UNTIL WE FIND THE CURE.
Again, I ask that you participate in the fight for cancer by supporting not only my team during this event, but support all of us who have or potentially will lose someone to cancer.
One more thing Eli will plan on walking during the Relay.
Sincerly,
Paul B. Matthews
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http://xlforum.net/photopost/data/502/medium/eli1.jpg
http://xlforum.net/photopost/data/502/medium/eli2.jpg
bplinson 20th January 2008, 16:47 Here is some more info on Relay for Life.
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Relay For Life®, the American Cancer Society's signature event, is a fun-filled overnight experience designed to bring together those who have been touched by cancer. At Relay, people from within the community gather to celebrate survivors, remember those lost to cancer, and to fight back against this disease. Relay participants help raise money and awareness to support the American Cancer Society in its lifesaving mission to eliminate cancer as a major health issue. During Relay For Life ® events, teams of people gather at schools, fairgrounds, or parks and take turns walking or running laps. The events are held overnight to represent the fact that cancer never sleeps. Through the survivors' lap and the luminaria ceremony, we honor the people who have faced cancer first hand, and we remember those who have been lost to this disease.
But, Relay isn't about taking laps -- it's about coming together in the fight against cancer. It’s a time to remember those lost to this disease and celebrate those who have survived. It’s a place where people connect with others, share the cancer experience, and find comfort and solace. And it's an opportunity to build hope for a future where cancer no longer threatens the lives of the people we love.
bplinson 20th January 2008, 16:54 I just donated $100.00 and challenge those that are able to match my donation.
XLF members have always been generous in the past. Lets do it again this time!!
Panther 20th January 2008, 17:57 Bert, I just logged into the Forum and was so happy to see this post. My son Eli is here with me, and wanted me to say to all the great riders out their, thank you for everything. Eli wants to take a ride on my Sporty when it warms up. I told him he can even REV the (MOTOR) to hear those (PIPES). He loves that Harley sound. I read the e-mail to him, and he is so happy that you, and many others will help against this fight:boxing. Eli wanted this little boxing face; so I posted it for him.
decman 20th January 2008, 20:46 Panther,
Another $100 headed your way.
Sorry to hear about your son, hope all goes well.
We do the Relay For Life every year in NJ, great cause.
Dec
dagsportster 20th January 2008, 21:02 I just donated $100.00 and challenge those that are able to match my donation.
XLF members have always been generous in the past. Lets do it again this time!!
I added another $100 added to the pot. When my son Eric died last September, I received so much support from my XLF friends -- people I'd never even met, but only shared a connection to through this great site. My prayers and thoughts go out to Paul and his family. God bless.
stealthammer 20th January 2008, 21:53 Get well Eli.
Panther & Bert, thanks for letting us help out!
Screw Loose Dan 21st January 2008, 00:26 Panther - Hope all is well with you and the family. I've been to CHOP for the toy run in December the last couple of years. I also did work at Temple Hospital a few years back. The work I did at Temple took me into every single room on every single floor in every wing. I have to say, seeing the Children's Hospital at Temple was really rough. Those days were really bad...I can't begin to imagine what it's like to have a child in that situation.
I didn't match Bert's contribution...but I gave what I could. We'll keep this thread near the top (bump!), so I'm confident you'll meet your goal.
Panther 21st January 2008, 00:53 I just wanted to say what a GREAT group of people you are. You are so thoughtful, and my son Eli says thanks to you all; and keep it up. We will fight this CANCER!!! At the Relay I'll have a BIG sign XL FORUM. I want to form the first FIGHT AGAINST CHILDHOOD CANCER RIDE. I know their must be a bunch of my fellow riders, Ladys and guys in my neck of the woods.
ParrotHead 21st January 2008, 01:03 Panther, our thoughts are with you and your family
:bananaAnother $100.:banana
Chris
emzdogz 21st January 2008, 01:11 kicked in a bit too. Wish it could be more. Best wishes to Eli!
:)
stealthammer 21st January 2008, 03:08 Panther,
You're at about 30% of your bELIeve Team goal!!! Every little bit helps.
:clap :clap :clap :clap :clap :clap :clap
:bump
stealthammer 21st January 2008, 12:19 :bump
.
Panther 21st January 2008, 14:00 Stealthammer, yes every little bit helps. I love this FORUM. You Guy's and Gal's are making a BIG! diffrence in not only my son Eli's life, but many others. Let's take this to the finish line, as I will walk with my team the bELIeve team for 20 hours on May 16th to the 17th.
williamv1203 21st January 2008, 14:49 For the benefit of those of us in other countries who may wish to donate, is there a Paypal account set up for this? Or some other possibility...
Moe47 21st January 2008, 15:08 Hey, I matched Bert's challenge. Let's not rest on our forum reputation of being generous, we need to do it again! Why don't we try hard and watch the goal be exceeded (doubled maybe?)!
Best of luck Panther and Eli! Keep the faith. :boxing Moe
:tour
Moe47 21st January 2008, 15:10 For the benefit of those of us in other countries who may wish to donate, is there a Paypal account set up for this? Or some other possibility...
Hey, the link early in Berts post takes you to a site where you can use a credit card. Thats what I just did. :)
:tour
k-poppy 21st January 2008, 16:04 Great thing going on here guys!! I also just made a donation. My wifes nephue came down with leukemia when he was around 3 years old. After a long battle, he won!! He is now 14 years old and happy and healthy as a horse.. It can be beat...
Panther, all the best to you and yours, My familys thoughts and prayers are with you and your family.
POP
Panther 21st January 2008, 16:19 Thank you all for everything you are doing hear from the bottom of our hearts. You must bELIeve.
williamv1203 21st January 2008, 19:07 Many thanks Moe47! If it'd been a snake... You know the rest...
bplinson 21st January 2008, 19:17 Come on all you Europeans you know you can give a bunch.
1 British Pound is what...about $100 now? :p
And a Euro Dollar is almost $50 right???
:danceman
wasteddog 21st January 2008, 21:41 Thanks to Bert for letting us know about this.
I matched Bert's as well.
All the best in the fight! Keep Strong!
jamez1965 21st January 2008, 21:53 A link is much better than snail-mailing a paper check.
Here it is again:
http://main.acsevents.org/site/TR/RelayForLife/RelayForLifePennsylvaniaDivision?team_id=192101&pg=team&fr_id=7602
sportyblue 21st January 2008, 23:38 I matched Bert's 100 bucks also.
Hey Eli,
I like all the stuffties in your picture but my favorite might be the little puppy stufftie. You keep up the good fight and get well. We are all sending prayers your way. :boxing
shame 21st January 2008, 23:41 Another match... God bless and keep the faith.
Shame
RoadChick 22nd January 2008, 00:00 Just donated $100 to your son's cause. :)
RoadChick 22nd January 2008, 00:07 Oh I forgot, my employer matches, so you get another $100. I will submit the paperwork right now. :banana:banana:banana
stealthammer 22nd January 2008, 01:47 33 hours and 44%!!!
:clap :clap :clap :clap :clap :clap
:Bump
Panther 22nd January 2008, 03:05 Eli was just checking out some of your post, and he really likes the post from the lady riders:laugh That boy takes after his daddy:tour I can tell you he loves my Sporty, and wants to ride with me in the summer, and he will! Eli is the Bravest 7 year old you will meet, and is my HERO. I have been to WAR, and spent 9 years in the ARMY. I find myself helping my son fight the biggest enemy of all CANCER. When I tell you I thank you from the bottom of my heart I do. What you are all doing is the best reward in my life. Not all the ribbons, or awards I recieved it's this. I'll never forget this. Thank you.
wasteddog 22nd January 2008, 03:13 Thanks for your recent email. I was happy to be a member of this forum but now I'm proud as well.
If I am not mistaken, there will be more help to come from this increadable comunity of far flung freinds.
My best thoughts are on the way from up here in Canada
Screw Loose Dan 22nd January 2008, 03:48 At this point, 46%.
Goal:
$5,000.00
Achieved:
$2,278.00
http://main.acsevents.org/site/TR/RelayForLife/RelayForLifePennsylvaniaDivision?team_id=192101&pg=team&fr_id=7602
stealthammer 22nd January 2008, 05:50 Another bump for Eli
:bump
RemnantRider7 22nd January 2008, 10:05 Eli Get well Soon!!!!!!!!!!!!!!!!Paul hang in there our prayers go up for you and your family God Bless!!!!
Gone 22nd January 2008, 12:59 and thank you for showing us courage! May God bless you and your family, Eli.
Kindest regards,
Curt
stealthammer 22nd January 2008, 16:17 Yet another bump for Eli.
Anyone out there who has thought of contributing but can't afford much, take heart. A $10 donation from 10 people is still a $100 for a VERY worthy cause.
jcastino 22nd January 2008, 17:48 Let's keep this going!...I'll take this challenge Eli! Thank you for having the courage to face this part of life. The Lord will reward you and works in your life everyday!
$100 for you and many blessings for you and your family.:):):):):):):)
SoCal-Cruisin 22nd January 2008, 18:22 I just added a few $. I hope it gets you a little closer to your goal. Good luck!
DRAWTOOL 22nd January 2008, 20:07 I'm a man of my word, I have previously posted my offer of $100 to a worthy cause, so here she be.
Best of Luck Eli
Mike
stealthammer 23rd January 2008, 00:03 60%!!!!!
:clap :clap :clap :clap :clap :clap :clap
:bump
buckhorns 23rd January 2008, 00:12 Sent my note yesterday.
I am a cancer surviver myself. I'm hoping Eli and others will be too.
Panther 23rd January 2008, 00:49 Guess what Eli and I just added another $200.00 for the cause. Eli loved sending that money, he knows he has CANCER, and he also knows we will BEAT this. I love my boys. Thank you all we are at $3,203.00 LOVE IT!!!:laugh
stealthammer 23rd January 2008, 04:25 And yet another bump for Eli.
I've been watching the response to Paul's and Bert's post and one thing has REALLY impressed me. The membership here on the XLForum has been awesome in their generosity to support a fellow member.
:clap :clap :clap :clap :clap :clap :clap :clap :clap :clap :clap :clap :clap :clap
Paul, I am also sending out an e-mail to many of my non-member friends as well because I believe that they would appreciate the opportunity to participate.
.
Screw Loose Dan 23rd January 2008, 14:56 Wow! 64% of the way to your goal!!
Goal:
$5,000.00
Achieved:
$3,203.00
Those just joining the thread, should go back to the beginning and review Bert's challenge. Or, simply follow this link here to contribute:
http://main.acsevents.org/site/TR/RelayForLife/RelayForLifePennsylvaniaDivision?team_id=192101&pg=team&fr_id=7602
bplinson 23rd January 2008, 17:25 This is really amazing. When I made that first donation I had only put the amount donated up to $560.00. The but up to over $3200.00 show me again how generous XLF members are.
Please give if you can.
RemnantRider7 23rd January 2008, 20:26 Just stoppin by for a update glad to see the progress :) eli you made so many new friends :banana we Love ya !:clap
Panther 23rd January 2008, 20:41 Yes Bert the XL FORUM members have pulled together to help raise money to fight CANCER. I'm so proud to be a part of this FORUM, and my son Eli just looks at me like WOW! these people are helping our bELIeve team, and people with CANCER like him. When I look at my 7 year old I just wonder how something like this could happen to such a wonderful kid! I'll tell you this. During my wifes second ultra sound the doctor called us into the office, and said their was a problem with the ultra sound. He said our son might be mentaly retarted, or a dwarf, or whatever.... He then ask if we would concider terminating at that time. (Can you bELIeve he said most parents don't want anything less then a perfect child)!!! Now I ask are you perfect? he said no... I said we will schedule a c-section, and see you then. Well when Eli was born he did need one major operation. Eli had the front of his skull removed, and eye sockets, and the surgery was more then 6 hours. Eli the brave little boy you are helping, lost 75% of his blood volume during that surgery. I remember like it was yesturday telling the surgon yes at (CHOP) the best hospital in the world in my opinon. I said WOW! our son looks like his brother did at that age of 10 months old. Yes Eli was 10 months old when he had that surgery. The Dr said Paul I I just put him back together the way I thought GOD wanted. The same boy now fights this CANCER. I'll tell you this with all the thoughts, and prayers out their and friends like you and GOD watching over him he will BEAT this we must bELIeve.... Thank you all. Panther
grindbastard 23rd January 2008, 21:51 Bump!
Dropped a small donation. My heart and thoughts are with your family.
:bump
stealthammer 24th January 2008, 04:03 We're almost 2/3 the way there.....
:bump
bplinson 24th January 2008, 06:47 Up to 69% as of right now. 69 is one of my favorite numbers but 100 is even better!!!
64physhy 24th January 2008, 08:36 I just gave. You're doing a great thing. I hope your son beats it. Those who are faced with and overcome adversity at young ages usually turn out to be better people. $1542 to go
Screw Loose Dan 24th January 2008, 15:27 Up to 69% as of right now. 69 is one of my favorite numbers but 100 is even better!!!
I love the number 69 as well, but I think we've been there too long!! (bump)
stealthammer 24th January 2008, 18:33 A 'Good Morning' bump for Panther, Ruth, Austin, and Eli!!!
:bump
.
jamez1965 24th January 2008, 19:51 :bump:bump:bump:bump
stealthammer 24th January 2008, 21:13 $50.00 more from my mom!
stealthammer 24th January 2008, 22:15 Another $100.00 courtesy of the new tax refund.
64physhy 24th January 2008, 22:38 :bump
$3608...72%
RoadChick 24th January 2008, 22:40 When does the fundraising event end???
64physhy 24th January 2008, 22:42 http://main.acsevents.org/site/TR/RelayForLife/RelayForLifePennsylvaniaDivision?team_id=192101&pg=team&fr_id=7602
Blacktooth Grin 24th January 2008, 23:33 I'll toss in a little too.
stealthammer 25th January 2008, 00:21 When does the fundraising event end???
The link that Bert posted in the OP (and 64physhy reposted below) is Paul's (Panther) son Eli's 'The bELIeve Team ' home page and has information on their team and their progress toward meeting their goal for the 'Relay For Life® of Oxford' event to be held from 4pm on May 16 through 12noon on May 17 at Oxford Statium in Oxford, PA. Their team is one of 11 teams that are participating in the 20 hour walk. For more information on the event itself, check out:
http://main.acsevents.org/site/TR/RelayForLife/RelayForLifePennsylvaniaDivision?pg=entry&fr_id=7602
.
stealthammer 25th January 2008, 02:33 :bump
.
John1200 25th January 2008, 03:41 I am blessed with three healthy children. My oldest son's name is Austin who runs cross-country and track. You have my pledge for $100 which I will mail tomorrow.
Panther 25th January 2008, 04:58 I just wanted to take a moment and give you some news about Eli. Eli is in REMISSION:banana When Eli was diagnosed with this diseases the doctors told us he had 97% of his bone Marrow saturated with this CANCER. The Oncologist started a very agressive treatment, and 15 days later the Cancer could not be detacted in him. Understand Eli has three years of Chemotherepy ahead of him to be cured for life. Eli has showed us what a HERO is. He has had over 8 Spinal Taps, 5 Bone Marrow punchures, 25 plus IV lines, over 20 X-Rays, and the first 7 year old to have an MRI in the tunnel for 1 hour on his brain without being sadated, He has had blood transfusions, and an ambulance ride to (CHOP) when we had know idea what was happening to our son. Understand me when I tell you I'm forever grateful to all of you for the kindness in your hearts. I only hope one day to meet anyone of you. I would love for my son to meet Stealthammer some day as this Man that I have never meet has been watching our backs here as well as others Bumping the thread. And Thank you Bert for granting me the go-a-head to do this. (And then posting it for me). You all know that the cause is clear. CANCER does not care who it touches! We can only hope and pray we never have to deal with such a MONSTER! I thank GOD, and all of you for your help. Panther
decman 25th January 2008, 06:12 Paul,
Great news about Eli, we wish him all the best. He sound like a real trooper.
I have an idea. We, as the XL Forum, arrange a group ride to the Relay
for Life in Oxford, PA and maybe deliver some addition money in person.
It's held on May 16 and 17 right? Perfect riding weather.
We do this in NJ at the Medford, NJ Relay for life every June.
We arrange a "run" to the Relay site and do a few laps around the field
on foot, off the bikes.
OK all you PA/NJ/DE/MD(add your state here) area folks, what do you think?
stealthammer 25th January 2008, 13:33 I have an idea. We, as the XL Forum, arrange a group ride to the Relay for Life in Oxford, PA and maybe deliver some addition money in person.......
Awesome idea Decman. I've already made arrangements to attend.
.
Panther 25th January 2008, 14:06 I'm off the 16th of May for the Relay For Life, and would love to meet up with as many of my XL FORUM friends and RIDE prior to this event. We could meet at any location, and I would just need to be at the RELAY site by 3:30p.m. I can't bELIeve this. Eli will be so happy I can't tell you how much this will mean to not only Eli, but the whole RELAY FOR LIFE WOW!!!!!!!!! And to read what you said Stealthammer just amazed me. I can't wait to meet you.:clap:clap:clap:clap:clap:clap:clap:clap:clap I just put another $200.00 in the POT!!
stealthammer 25th January 2008, 14:24 I just wanted to take a moment and give you some news about Eli. Eli is in REMISSION:banana
Paul,
After hearing the chronology of your family's battle, and being privileged to see the response of this forum to assisting you and your family in supporting the people at The Children's Hospital of Philadelphia who provided your son with the medical support that helped him to achieve success against this dreaded enemy, I am honored to having been allowed to participate.
We have all worked together to reach 78% of 'The bELieve Team's' $5000 goal for the Relay for Life as of 4:30am PST today. I am commited to seeing that goal reached today ('$5k in 5 days'), and then doubling it again by May 16-17.
I have already made arrangements to attend the 'Relay For Life of Oxford' event myself and see that Decman is proposing an organized XLForum member run to attend from the East Coast. :clap I would like to arrange for a run from the West Coast as well. How about it? Any other XLForum members on the West Coast want to participate?
decman 25th January 2008, 17:06 Well there are Relay For Life events all over the US.
Check their web site for an event near you and you can plan a regional
ride around the same time.
The NJ/PA/etc group gets together a few times a year for a meet and greet
so it would be great to have a great cause to make it that much better.
I have to tell you that I may not be able to make the May 16/17 relay, :frownone
I already have travel arranged for that time period. Although with my
job that can change at the last minute.
BUT I will still take charge of arranging the ride. :tour
I'm sure I will have lots of help from the gang.
Dec
Panther 25th January 2008, 17:39 I just rounded the number off at $4,000.00:banana:banana:banana:banana That equals 80% of GOAL:laugh:laugh:laugh:laugh
stealthammer 25th January 2008, 19:17 Well there are Relay For Life events all over the US......
.....BUT I will still take charge of arranging the ride. :tour
I'm sure I will have lots of help from the gang.
Dec
Your suggestion for an organized run to the 'Relay For Life of Oxford' is a great idea and I am 100% behind it. I generally don't have time to participate in organized runs, but this event has special meaning to me because of the opportunity that Paul has extended us on the XLForum to participate in his commitment to engage in this battle.
I started a thread on the forum this morning for the 'Relay For Life' that will hopefully give us a central point of contact with the other members who are interested in participating in these events across the nation.
http://xlforum.net/vbportal/forums/showthread.php?t=150119
Your offer to help organize a run to the 'Relay For Life of Oxford is very generous. I have little experience in organizing this type of event, but will do whatever I can to get it together.
stealthammer 25th January 2008, 23:36 A Friday evening :bump
*For the East Coast anyway :smoke
John1200 26th January 2008, 00:34 That is certainly good news about Eli. He surely is a tough little man. It is amazing to witness the lessons in life that can be learned from children. My thoughts and prayers are with Eli, you, and your family.
stealthammer 26th January 2008, 01:02 We only have $1000 left to raise to reach Panther's $5000 goal.
I will match every dollar donated to this cause by a forum member before 12am midnight (PST) one-for-one until we reach that goal.
That means that we only need to raise $500 to meet the goal by midnight.
Anyone wanting to donate please visit the link below:
http://main.acsevents.org/site/TR/Re...eam&fr_id=7602
stealthammer 26th January 2008, 03:23 $4506!!!
.
Panther 26th January 2008, 04:11 Okay I made my appointment at the Tattoo shop for February 9th. I'm geeting the Tattoo Believe under my cross I'll never forget this time in my life... Thank you all.. I bELIeve in a cure. Look at what has happened here. It's true Harley rider's share a bond like no other rider's in the world.. We band together from around the world to fight this cause. To Kill CANCER. We all made, and continue to make a diffrence in so many peoples lives my son is so proud, and he loves Harley's so much (Sportster's) that is. Eli does not know this, but Daddy wil buy him his first Harley some day. :clap:clap:clap:clap:clap:clap:clap:clap:clap:clap :clap
Panther 26th January 2008, 05:04 $4,606.00 as of 10:59 PM
Panther 26th January 2008, 05:39 Stealthammer and XLForum Eli and I just put in $147.00 Now that brings the total to $4,753.00 at 11:36PM so Stealthammer if my MATH is correct if you add $100.00 from the above number plus the $147.00 that equals $247.00 so $247.00 plus $4,753.00 that make $5,000.00 My friend am I correct Sir:banadanc:clap:banana:laugh:smoke:rolleyes::p:t our:banadanc:banana:laugh:tour:clap I can't bELIeve this WOW!!!!!!!!!!!!!!
Panther 26th January 2008, 05:58 $4,853.00 at 11:56 PM:clap:clap:clap
stealthammer 26th January 2008, 07:39 10:37PM PST:
The bELIeve Team's total is:
$5000
:clap :clap :clap :clap :clap
64physhy 26th January 2008, 07:51 :banapart
:dancesmil:dancesmil:dancesmil
:band
:xlrocks
bplinson 26th January 2008, 08:10 Totally AWESOME! I am amazed how so many here have come together to help out.
But just because the goal has been reached does not mean that anyone out that has not had the chance to give a little can not. I am sure the bELIeve team will accept donations up until te day of the Relay For Life
Panther 26th January 2008, 18:21 As I sit here with my son's Eli and Austin we are amazed at all of this. We as a team the bELIeve team are fighting this CANCER:headb:headb We thank you from the bottom of our hearts:clap We blew the top off the Thermometer:dancesmil Stealthammer Eli is mailing you something on Monday:chop he is working on it:banana:banadanc:clap:leekguit:banarock:danceele :boxing:bluebanan:brocoli:banapart:sofa As you can see Eli is trying all the cool little faces:laugh:laugh:laugh:laugh:laugh:laugh
prhousejr 26th January 2008, 19:02 ELI, You hang tough big man! I am honored to help you guys. Just made the donation, thanks for allowing us to help. My son was born premature, and he had to go through alot to make it. I am glad to say that thanks to help, and prayers from alot of people who for the most part I did'nt know he is two years old and doing GREAT!
COME ON GUYS, LETS NOT JUST HELP THEM MEET THEIR GOAL, LETS BLOW THE LID OFF!!
Bruce 27th January 2008, 18:43 This is my 900th post and I made it special by donating to Paul's relay for life team. I will be praying for you Paul.
stealthammer 27th January 2008, 18:48 Bert did a very nice write up on the XLForum's support of 'The bELIeve Team' in the XLF Weekly Bulletin this week. Thank you Bert.
The 'Relay For Life of Oxford' event is a 20 hour walking relay that begins at 4pm May16 and continues throughout the night, ending at 12pm the next day. The reason that it is held overnight is to keep focus on the fact that cancer never sleeps. It is an insidious disease that will continue to march forward until WE stop it.
The bELIeve team has reached it's original goal of $5000 thanks in very large part to the members of the XLForum who donated. Thank you everyone.
The team is continuing to accept donations though, because our best weapon against this voracious enemy is research. If you haven't had a chance to help out please follow the link below:
http://main.acsevents.org/site/TR/RelayForLife/RelayForLifePennsylvaniaDivision?team_id=192101&pg=team&fr_id=7602
.
bplinson 27th January 2008, 19:38 Oops!!! I goofed up. In the bulletin I called Barry STEELHAMMER instead of Stealthammer!
Guess that is because you fight cancer as if you are hitting it with a Steel hammer!
Twisty571 27th January 2008, 20:08 You guys are awesome! I hope Eli gets well,I will donate Friday when I get some extra loot.
stealthammer 27th January 2008, 22:42 Oops!!! I goofed up. In the bulletin I called Barry STEELHAMMER instead of Stealthammer!
Guess that is because you fight cancer as if you are hitting it with a Steel hammer!
I actually had to go back to my e-mail see what you meant.....I guess I was reading though it too fast notice it myself! :smoke
Bert, thank you for the article in the XLF Weekly Bulletin, it's another great way to keep this cause visible.
Panther 28th January 2008, 01:40 Bert your weekly bulletin was outstanding. This XLForum is outstanding! I'm glad I took a chance to send you the e-mail that started this. Because you took the chance to post it, we have raised more awareness against this monster! That's what CANCER is a Monster. This XLForum has helped save many lives. Now that the XLForum has done this and continues to raise money others will see this and will want to achieve the same. It will continue to spread like wild fire because of it. Their is one member that has went above and beyond for this fight, and that's Stealthammer. On January 26, 2008 I promoted Stealthammer to our West coast team Captains postion, Stealthammer is someone that is a true friend. Although I never met him I hope we all do in May during the Relay for life. I hope to meet alot of the XLFourm members during the Relay for life. So from the very bottom of my heart Thank you my friends thank you.
P.S. Eli will go to school for the first time in over 2 1/2 months tomorow:laugh I took the day off because he said Daddy will you go with me:clap of course I said yes son I will. Eli will only go for 1/2 days at this time. Eli is in 1st grade. Check this out he said Daddy I laid my clothes out for school go check them out on my bed. Well guess what? It was all HARLEY clothes shirt, bandana and everything:banadanc:banana:tour:clap I Love that boy!!!!
stealthammer 28th January 2008, 04:29 .....P.S. Eli will go to school for the first time in over 2 1/2 months tomorow:laugh I took the day off because he said Daddy will you go with me:clap of course I said yes son I will. Eli will only go for 1/2 days at this time. Eli is in 1st grade. Check this out he said Daddy I laid my clothes out for school go check them out on my bed. Well guess what? It was all HARLEY clothes shirt, bandana and everything:banadanc:banana:tour:clap I Love that boy!!!!
AWESOME NEWS PAUL!!!
This is great news.
Not only does Eli get to return to some sense of a 'normal' life, but he will raise the awareness of the other kids in his class to what cancer is about, and that it can be beaten!!!
:clap :banana :clap :banana :clap :banana :clap :banana :clap
.
Hanoverfiste 29th January 2008, 17:26 This is the first time I saw the thread, I see you reached your goal, but I chipped in a little anyways. We wish you and your family Well :)
stealthammer 30th January 2008, 02:25 This is the first time I saw the thread, I see you reached your goal, but I chipped in a little anyways. We wish you and your family Well :)
'The bELIeve Team's' original goal of raising $5000 by May 16th for the "Relay For Life at Oxford' was set because it seemed at the time to be a immensely challenging target, and yet attainable with perseverance and a good bit of luck.
The XLForum membership truely rose to meet the team's challenge in support of Paul (Panther), Ruth, Austin, and of course Eli over this past week, and in their battle against cancer. In fact, we helped 'The bELIeve Team' to exceed it's fundraising goal in 5 days!!! Few of us would have even thought that this was possible a week ago, but the outpouring of compassion and brotherhood from the forum's membership has been absolutely amazing.
Every XLForum member should be extremely proud of this accomplishment. :clap :clap :clap :clap :clap :clap :clap
The battle against cancer is not over however, and 'The bELIeve Team' will not rest on what we have all helped them to accomplish. Their battle will only end when a cure is found, and no one is ever victimized by this dreaded disease again.
The team will continue to work tirelessly in it's 'grassroots' effort to raise the American public's awareness of this fight because the battle can only be won if we all work together. They will also continue to accept donations that will help to fund the American Cancer Society in it's commitment to wipe all forms of cancer off of the planet.
If you haven't been able to make a donation to 'The bELIeve Team's' cause over the past week, please donate when you can. If you have already made a donation, Thank you very much for your support! If you have made a donation and wish to donate again between now and May 16th, please do!
THE XLFORUM ROCKS!!!
.
64physhy 30th January 2008, 02:38 There are plenty of Paydays between now and May 15, so if you can't afford to chip in $100 at once, kick in like $20 or so each payday. That's my plan anyway.
stealthammer 30th January 2008, 05:06 I got an e-mail from Panther this evening with some pictures of Eli's first day back at school and he asked me to share them with the XLForum members:
It must have been an incredible day for both Paul and Eli..... and for Eli's classmates! (gulp!)
"Check out Eli on his first day back to school in over 2 1/2 months. Thank you all for your thoughts and prayers. Check out that lady's man. All the girls wanted to sit by him during reading time. That's my boy!" - Panther
http://xlforum.net/photopost/data/917/medium/Picture_160.jpg
http://xlforum.net/photopost/data/917/medium/Picture_156.jpg
http://xlforum.net/photopost/data/917/medium/Picture_149.jpg
http://xlforum.net/photopost/data/917/medium/Picture_158.jpg
bplinson 30th January 2008, 06:57 Great photos!!! I will be definitely give some more when I get the chance.
I wish the girls were as crazy about me!!
Panther 30th January 2008, 16:26 I just wanted to thank you for posting those photos for me, the past few days have been hectic. My wife's granmother (Nana) passes away at the age of 101 1/2. She was an amazing women, she had her mind, and most of her real teeth even:clap I got to visit her before she passes, and we found out that she even made her own funeral arrangments about 10 years ago.
On a good note Eli is doing so good, he loves this XLForum. I read him the messages from the members daily. Eli loved your post thanking everyone on the XLForum the other day. I have also thanked, and will continue to thank everyone of my Brothers, and Sister riders on this site. You all made, and continue to make a diffrence in this fight against CANCER. I'll make this very clear the bELIeve team is recognized across the world now because of the XLForum.:banawala:danccow:carrot:chop
RoadChick 30th January 2008, 16:30 Great photos!!!
Thanks for sharing.....He is s cutie!!!
jerryvig 30th January 2008, 17:26 Just kicked in some more, hope it helps. I had tears in my eyes (and always considered myself a tough guy) reading all those generous posts. I'm pretty new here but I love to see people pull together. Best of luck Eli and family.
Panther 31st January 2008, 16:54 Hey their just a quick update on Eli. Eli has been back to school now for 4 days, and he's doing well. He is looking forward to Friday talking about a sleep over in his BIG brother Austins room. They want to stay up late and watch a movie :laugh Eli gets his Chemotherepy every night, (Pill form = 6 MP) and will have his next Spinal Tap on February 15th. These days are never fun. Eli is in a phase of his treatment called interm Maintance. On March 3rd he will go to the next Phase called delayed intenceification. Please continue to pray for Eli, as he is the bravest little guy I know. He is truly my HERO:clap
jrossty 31st January 2008, 17:10 Hey their just a quick update on Eli. Eli has been back to school now for 4 days, and he's doing well. He is looking forward to Friday talking about a sleep over in his BIG brother Austins room. They want to stay up late and watch a movie :laugh Eli gets his Chemotherepy every night, (Pill form = 6 MP) and will have his next Spinal Tap on February 15th. These days are never fun. Eli is in a phase of his treatment called interm Maintance. On March 3rd he will go to the next Phase called delayed intenceification. Please continue to pray for Eli, as he is the bravest little guy I know. He is truly my HERO:clap
Oh man. I am sitting at my desk at work overcome with emotion for how courageous and positive Eli and his family have been through this time in their lives. The power of prayer is mighty. I will share with my family your story Eli (and family), and we will pray for your full and quick recovery.
I am humbled to think of how brave Eli is through this time... You have helped give me some perspective back in my own life. Thank you for sharing your lives with us, and although I am not able to monetarily give (right now), I will give my prayers and thoughts to you...
buckhorns 31st January 2008, 17:21 Hey Eli,
You are a tough little guy and you are going to be OK.
You are lucky to have the support of your very loving family and all of your friends.
All of us on the XL Forum pray for you and wish you a speedy recovery.
grindbastard 31st January 2008, 17:40 :clap:clap:clap:clap:clap:clap:clap:clap:clap:clap :clap:clap:clap:clap:clap:clap
Attaboy!
ParrotHead 31st January 2008, 22:31 ELI,
WAY TO GO! Glad to see you back to school.
Bruce 1st February 2008, 00:37 Eli, I'm glad to see you back at school. I hope you have a gerat time. Don't yoube to hard on the girls now.
stealthammer 3rd February 2008, 00:34 Another $110.00!!!
$50.00 from my local Ace Hardware store (they said it was the least they could do considering I had put their daughter through college! :doh), and $60.00 more from three guys who can't shoot pool........
:clap :clap :clap :clap :clap :clap :clap
Panther 3rd February 2008, 02:37 Stealthammer that's great:clap we are close to $6,000.00 I have a team Captains meeting at Herr's potato chip factory on February 12th. I can't wait to take them the BIG thermometer that we have in our kitchen that my son Austin has been keping up with. The top is off:banana I hope it will spark some movements in the other teams. At the relay my oldest son Austin may set-up his magic act that he is trying to perfect, and ask for donations. Their will also be music, food, and a good time for this GREAT cause raise money to KILL CANCER:headb:headb:headb:headb
sportyblue 4th February 2008, 00:56 Hi Eli,
That's fantastic that you're back in school. I loved the pictures of you and your classmates and guess what......you look normal ! How cool is that !
My prayers keep coming your way............:)
Panther 5th February 2008, 03:12 Eli had off from school today, he was not feeling well. (A Cold) thank GOD! we pray that he does not get a fever. If ever a fever it will mean a visit to (CHOP). The good news is he should go back to school in the morning:laugh Stealthammer thank you for the Harley shirt, and Bandana:banana Eli loved them both. It made his day when the mail came and it was for him. We are trying to colect different bandanas for him to wear to school plus he loves them anyway. Hey the weather was so nice yesturday my buddy, and I got out for a little ride I :luvsport so much, and I love to ride when I get a chance, and guess what I told Eli I was just going out for a little ride and he said Dad go out for a long one and gave me a HUG!!!!
stealthammer 9th February 2008, 02:48 :bump For Friday night
Panther 11th February 2008, 16:40 Hi their Brother, and Sister riders. Eli says hi:laugh Eli had a great week, and his blood counts seem to be up. We will take Eli to his appointment on Friday, and he will get an IV line put in, and recieve (VCR Vinchristine) and a Spinal tap with IT-MTX Methotrexate put in the Spinal location by injection. This is all Chemo! Eli will also have (7 1/2 pills of Methotrexate) and be put back on Dexamethasone (Steroids) for 5 days 2 x a day. he will also have his Mercaptopurine 6 MP by mouth at night. As you can see this will be a BIG! day for us all mainly Eli. The good news is his BIG brother Austin is off from school, this is always good for Eli when Austin is their with him as support. Please say a prayer for Eli that all goes well, and he has NO!!!!! negative reactions to all this Cheomtherepy that he will get on Friday. Thank you my friends.
Moe47 11th February 2008, 16:47 Hi their Brother, and Sister riders. Eli says hi:laugh Eli had a great week, and his blood counts seem to be up. We will take Eli to his appointment on Friday, and he will get an IV line put in, and recieve (VCR Vinchristine) and a Spinal tap with IT-MTX Methotrexate put in the Spinal location by injection. This is all Chemo! Eli will also have (7 1/2 pills of Methotrexate) and be put back on Dexamethasone (Steroids) for 5 days 2 x a day. he will also have his Mercaptopurine 6 MP by mouth at night. As you can see this will be a BIG! day for us all mainly Eli. The good news is his BIG brother Austin is off from school, this is always good for Eli when Austin is their with him as support. Please say a prayer for Eli that all goes well, and he has NO!!!!! negative reactions to all this Cheomtherepy that he will get on Friday. Thank you my friends.
Hope all goes well, thanks for keeping us updated!
:tour
sportyblue 12th February 2008, 01:07 Panther............Thanks for the update. A prayer goes out for Eli and his family too. Stay strong.
ParrotHead 12th February 2008, 04:34 Panther,
our thoughts are with Eli and the rest of the family.
stealthammer 12th February 2008, 05:33 Thank you for the update Paul, and I'm very glad you all had a great week. My thoughts will be with your entire family this Friday.
.
Krypto 13th February 2008, 00:57 Panther, I fully understand your worries, your hopes, and prayers. I was diagnosed with cancer two years ago. After a long hard fought battle, and some surgery, I seem to be free of the stuff. Like yourself, I am a father of a wonderful son. For Eli, a C note. For your family our prayers for diligence, patience, perserverance, and conquest. God Bless!
bplinson 13th February 2008, 06:25 XLF Forum Members are great.
Thanks to all those who have donated or just sent their prayers or thoughts to help Eli.
RoadChick 13th February 2008, 06:39 I love this place, the members are awesome!!
Panther, I will be thinking about Eli and your family this Friday. I pray he comes out with flying colors...
Panther 16th February 2008, 04:06 Hi to all my XLForum friends, Today was a busy day for Eli. We got to the clinic around 7:45 a.m. and Eli had some numbing cream put on his hands so the IV would not hurt at all, and yes it worked also good news one poke and done. Eli's blood counts were good, and he did great with the Spinal Tap, and Chemo drug injection in the Spinal fluid. He also got the Vinchristine in the IV line another Chemo drug. All went well. After Eli laid still and flat for one hour off we went. My wife Ruth gave him his Steriods, and the other 2 Chemo drugs around 8 p.m. Please pray that he does not have any negative reactions tonight. Thank you my friends. Thank you.
stealthammer 17th February 2008, 13:16 I'm very glad that Eli's Friday appointments went well!!! He's a very tough little guy.
:clap :clap :clap :clap :clap :clap :clap
66impala 20th February 2008, 16:49 I helped the cause with a donation. My prayers are with your son and your family.
Panther 20th February 2008, 17:29 Thank you for helping the bELIeve team. The XLForum members are the best:clap My son Eli loves this site as well, and can't bELIeve Decman will be putting a ride together to come to this Relay For Life. Also Stealthammer is joining us all the way from out WEST:laugh this will be a time never to forget my friends.
decman 21st February 2008, 01:10 OK everyone, I finally got around to posting a thread for the first
XL Forum "Relay for Life" run.
Watch out Eli, we're coming to get you....:p
http://xlforum.net/vbportal/forums/showthread.php?t=165843
Panther 26th February 2008, 19:12 On Feb 25, 2008 Eli had an EKG, and ECO cardiogram done. My wife Ruth said he did very well, and the test will be read at CHOP Hospital. This test is very important for the next phase of treatment. The next phase the delayed intencification phase will be tough. Eli's blood counts will drop to ZERO!!! around the 3rd week of treatment. This phase will last for 56 days. I ask any of you to please join us for the Relay for Life ride. Eli said he can't wait to see all the XLForum Harley riders come into the Relay. He said he will be their to meet you all. I want to lead you into this event with a Police escort.
Moe47 26th February 2008, 19:31 We are all rooting for you!
I wish I could be at the Relay - oh well, I will be there in spirit!
:tour
sportyblue 26th February 2008, 23:58 I wish I could be there too Eli. Your doing a fantastic job winning this fight. You makes us proud to know you because you are so very courageous and brave.
My prayers continue to come your way.
ParrotHead 27th February 2008, 00:21 Sorry Eli, it is unlikely that I will be there. But I will be pulling for you in spirit!
stealthammer 28th February 2008, 14:18 A message from Paul Matthews:
Again thank you to all that donated to our team. I just wanted to take a moment to give you an update from the Captains Meeting I went to last night. Prior to heading out the door to the meeting I ask Eli, and Austin if their was anything they wanted me to ask, or go over in the meeting. Austin wanted me to take the Thermometer that he was keeping up with to show everyone how the top is blown off!!! Eli said daddy please let them know I want my Lemonade stand at the Relay for life. While I was at the meeting they made some anouncements. One of them went like this. We now have 18 teams for the Relay for life, and over $13,000.00 raised so far, and this is ahead of last year. Then they said the top three teams are -----, -----, and yes the Number one team at $5,855.00 is guess who?? the bELIeve team. They ask me to explain how this is... They said this is your first year, and we are interested in what your team has done to raise this amount of money. I first held up the thermometer that Austin ask me to hold up. All I could hear was clapping. I then said the captain of the Eli and Alex's lemonade stand my son Eli who was diagnosed with CANCER on November 15th, 2007 has ask for a spot for his Lemonade stand at the Relay for life to help raise money to fight childhood CANCER. They said pick it. It's yours. I then said okay here is how I did it. I have a team that bELIeves, and I promoted a great guy of the west coast to team captain. As I sat infront of my computor I had the best weapon in my hand to help in this fight. I then said I'm a member of the XLFourm the largest motorcycle forum for the Sportster Motorcycle in the world. I ask Bert in Germany to post a thread for me about Eli on his site, and he started the thread with a $100.00 donation, asking the other members to match. then a guy I never met, but will when he visits for the Relay for Life in May Stealthammer posted a $500.00 pledge, this blew my mind I never met any of these riders in my life, but the donations started rolling in fast. The bELIeve team is world wide now. This Forum is world wide. visit it and see at www.XLForum.net I told them this team is the best team ever, and we are no way done yet. I explained how a guy by the name of Decman is putting a ride together for as many riders from the Forum as he can pull together will meet in Oxford on the 17th, and be Police escorted into the Relay. Let me tell you, you will look to the sky wondering the location of the THUNDER. When you put all Harley's together that's what it sounds like. I told them the riders will get off their bikes, and walk a few laps, and turn more money over to the bELIeve team. The people just started clapping, and a guy came up to me and said I have heard of great things like this going on, but never meet anyone that it happend to. I said these riders are doing it for the fight against Cancer, and my son Eli. I ask my Forum riders reading this to please join us for this ride. Just go back to the original post, and follow Decmans thread, I want to meet as many of you that can make it. I will lead the Forum in this ride, and Eli will be waiting for us to Thunder into the Relay. With this e-mail I ask the rest of the bELIeve team to move forward, and collect as much money as you can. We must not stop... Get people to sponsor you, or just go door to door and ask for help to fight CANCER. Thank you all again for your help in this FIGHT!!!
- Panther
stealthammer 1st March 2008, 19:45 Paul, thanks for the update. As soon as we can upload pictures I will post a few of Eli's Alex and Eli lemonade stand....
Wizzard Of Odds 3rd March 2008, 07:43 Damn guys, next time one of these threads comes up please somebody PM me. I'm ALWAYS ready to pitch in and help a kiddo in need.
I totally missed this, and I apologize for being late to the party.
Sent $100 anyway, hope it still helps you meet your goal.
Regardless, I'm looking at coming to the ride in May!!!!
Panther 9th March 2008, 18:33 Sunday 3/9/2008
Hello, We hope you are all doing well. Eli is so happy right now that he does not have to take any med's for this week.:banadanc The only med's we have to give are Bactrum Monday, and Tuesday, and at 5 p.m. his previcid. This is the break he get's before he starts the next phase of treatment. On Friday his appointment is at 8 a.m. at the clinic. We ask that you pray this phase goes well for Eli as it's a difficult part of his treatment. We know their will be some bad days for him in this phase, but as you know he's a very BRAVE, and STRONG little guy. Love the Matthews family.
sportyblue 9th March 2008, 18:48 Thanks for the update. I think about him often.......wondering.
Panther 13th March 2008, 03:05 Wednesday 3/12/2008
Hi their friends. I'll start by telling you the last eight weeks for Eli have been great. Now we must brace for what is called the Delayed Intensification phase of Eli's treatment. Friday March 14th we need to be at the clinic at 8 a.m. Eli will get another Spinal Tap, and some new Chemo drug's. He will also get some Chemo drug's that he already had. The doctors warn that this will be a very dificult time, and Eli will most likely recieve blood transfusions, as well as the need for blood platlets. Eli will be going to the clinic weekly, and some times 2 times a week. Eli will get a shot called (PEG) this shot is one in each top part of his legs at the same time. This will happen around the 19th, or the 20th. You know each child reacts diffrently to this Chemotherepy, so we pray our brave little boy will make it through this phase with no suffering. Okay on a good note Eli and Alex's Lemonade stand was deliverd tonight. Our friend Dave MacQuaid just finished tweeking it, and Eli loves it. This stand can go up so fast :-) Eli said he will help fight childhood cancer with his stand. Eli also said he would continue to raise money even when he is all better. This little boy is so BRAVE I know the lord has a plan for him. He has been through skull reconstruction surgery at the age of 10 months old, now this fight! He is only 7 years old, and has been through so much. I ask all of you to pray very hard through this 56 days of treatment starting this Friday. Eli said a prayer the other night outloud, and he said. (Dear GOD please let my clinic visit be a good one so I can sleep in my brother Austins room on Friday, and Saturday night). As I type this I get a tear in my eye. Again thank you all for your thoughts, and prayers. Love the Matthews Family.
sportyblue 13th March 2008, 03:34 I got some tears going on too just reading this. He is a very brave little guy. Panther, you and Eli's Momma have to be a couple of very brave people too....this is a tough one to get through.
Thanks for the update.
Moe47 13th March 2008, 13:11 I bELIve you will make it through this phase just fine!
Continued best wishes too all! Keep up the fight :boxing !
:tour
Panther 14th March 2008, 23:05 Friday 3/14/2008
Okay, we are now in the Delayed Intensfication phase of Eli's treatment. This is how the day went. We got out the door by 6:40 a.m., arrived at the clinic at 7:45 a.m. They first put the numbing cream on both hands to allow time for it to work. The nurse then tried to get the blood from the right hand with no luck so they got it from the left hand.(Eli wants to name that vein "Taz" he said) Eli's blood counts came back as normal as you and I. The doctors words were Eli's counts are Fabulous!! :-) This is a good way to start this phase she said. Now it was time for the spinal tap, and Intrathecal Methotrexate. They only used one dose of Fentanol, and one dose of Verset, like the last time, and all went well. Eli is awake during these spinal tap's, but due to the one drug does not remember stuff happening. Now it was time for the Vincristine, and the new Chemo drug called Doxorubicin. Eli is also back on Dexamethasone(steroid) for 21 days twice a day. We got the pill form now, and we crush it up in apple sauce. No bad taste this round. Eli will get his Pegaspargase shots on Monday, one in each upper part of his legs. All in all he did very well. He also got his bravery beads today. His necklace is getting really long! Please keep those prayers going, and as always, thank you for all of your support everyone. We appreciate it more than words can say.
The Matthews' family.
64physhy 14th March 2008, 23:12 It's good to hear that his blood counts were good. I hope and pray that everything continues to go well. I can tell that you and your family are phenomenal people. I believe that Eli has a VERY important mission in life.
64physhy 15th March 2008, 01:07 Stealth, didn't you post something about riding in the Relay For Life? Seems like I remember reading 2 different things, 1. You were going to organize a forum ride closer to the west coast, or 2. You were planning on going out and meeting Eli.
Unfortunately, it's unlikely that I would be able to head in Eli's direction, but if there's one planned in the So Cal or Vegas area, I would like to ride.
jnlee3 15th March 2008, 01:31 Panther, I will be praying for your son as well as the rest of your family every night. It's amazing how these hardships can affect a family. Keep your faith and stay strong in your sons eyes so he can stay strong as well.
I don't know exactly what you are dealing with but I too have a daughter, 9, with Cystic Fibrosis and know how hard things can be. Sounds like you guys are doing a great job.
Jesse
stealthammer 15th March 2008, 02:52 Stealth, didn't you post something about riding in the Relay For Life? Seems like I remember reading 2 different things, 1. You were going to organize a forum ride closer to the west coast, or 2. You were planning on going out and meeting Eli.
Unfortunately, it's unlikely that I would be able to head in Eli's direction, but if there's one planned in the So Cal or Vegas area, I would like to ride.
I'd like to ride out to Oxford but I can only get four or five days off at work during that time so I will be flying to Oxford and renting a Sporty to ride while I'm there. Maybe we can put something together locally between now and then.
.
Brad 15th March 2008, 02:58 I'd like to ride out to Oxford but I can only get four or five days off at work during that time so I will be flying to Oxford and renting a Sporty to ride while I'm there. Maybe we can put something together locally between now and then.
.
You really flying to Oxford? Or Philly, BWI, or somewhere else? If you need a local contact drop me a PM, I'm less than 50 miles from Oxford.
Panther 17th March 2008, 22:36 Monday 3/17/2008
Hi friends, and family. Eli had his appointment today for his Pegaspargase shots. Eli went to school till Ruth picked him up around 11:45 a.m. I went to work then meet Eli and Ruth at the clinic around 12:45 p.m. for Eli's 1:00 p.m. appointment. The nurse put numbing cream on the upper part of both legs, and ask us to let that work for about 20 minutes. The nurse then called us back to the room and Eli got up on the table. Eli put his beloved puppy under his head, and layed down. Ruth was at his legs, and I was at his head, holding both of his hands. Eli ask the nurses to count to three and they said okay. On the number three the 2 nurses simultaneously administerd the (PEG) shots in his upper part of his legs. Eli did not flinch, and I'll tell you these shots had to go into his muscle. The one nurse said he was AMAZING, and we should be very proud of him, and we are. She also said he is the first one to take those shots like he did. The other nurse also said he did GREAT! Well Eli then sat up pulled up his pants, and went to play a Motorcycle game on the playstation for an hour. Thank you for all the prayers. Love the Matthews family.
Moe47 18th March 2008, 02:54 Way to go! I hope this phase continues smoothly.
Keep fighting guys :boxing we bELIeve you got this licked.
:tour
Malicious44 18th March 2008, 04:13 7 years ago(15yrs old) i had ewings sarcoma, a type of bone cancer, in my right pelvis. i've had my right illium, the hip bone wing part, removed along with the muscle that goes down the side of my leg. i've got 22k+ in the saddle since then, and i live everyday like it's my last. just wanted to send my regards to a kid i don't know, but understand what he's going through...
xlch_ice 18th March 2008, 14:48 I haven't read through the entire thread, but I want to mention this. We're lucky to live in a modern age of medicine and computers. There are many diseases that we cannot cure or prevent, and there is endless research to solve those issues. With our help, we can do even more. Many of you have generously donated your money and/or time. But, we can offer our computers as well.
http://boinc.bakerlab.org/rosetta/
http://folding.stanford.edu/
Both of these projects focus on protein folding in the focus of curing and preventing incurable diseases. They take different approaches to their study, but both rely on us (the millions of computer users across the world) to assist them. Basically, these two projects use distributed computing to tackle massively large computational study. By installing their software (totally spyware/virus/crap free) you can offer your unsused computer time/resources to process these computations. I personally run Rosetta@Home, but I've run Folding@Home as well and I have a few friends and collegues who run Folding@Home. I'm a network admin by trade, and I manage to sneak the BOINC framework (in which Rosetta relies upon) onto a couple of "test" machines in my testing network as well as the 5 home computers that I run Rosetta on. I'm just trying to do my part.
In encourage you guys to take up the fight against cancer any way you can. I think this is a great way that we can be an active part of the search for a cure.
Eli, I wish you well and my prayers are with you. Your strength and bravery are an inspiration.
sportyblue 18th March 2008, 19:09 Thanks for the update.
Also here is a pat on the back for Ruth and yourself. You guys are great parents and perhaps being a parent through something like this is one of the hardest things you'll ever do. Keep up the good work the good spirits and the good faith.
You all continue to be in my prayers.
Panther 19th March 2008, 03:30 Eli just had to get on the Sporty. He loves my Bike, and some day it will be his.:clap
64physhy 19th March 2008, 05:48 That's one cool kid.
Panther 19th March 2008, 15:02 Tuesday 3/18/2008
First of all thank you all for your prayers for our little guy. Eli went to school today, and we plan on him going every day that he can. He does go for 1/2 days, and it's good for his spirit. Eli is a real BRAVE boy, and can teach us all something. Eli is tired at night, he went to sleep around 7:55 p.m. he goes all day, and he had a busy day yesterday. Eli will go to the clinic on Friday for an IV line, blood counts, Vinchristine, and DOXO the RED chemo med through his IV line. (NO SPINAL TAP). I ask you to give blood if you can you never know who's life you may save. Also if you are around the Oxford area May 10th stop at Camerons Hardware FROM 10 A.M. TO 1 P.M. for some of Eli and Alex's Lemonade so we can fight this childhood cancer "ONE CUP AT A TIME"!
snowman 19th March 2008, 15:40 Eli just had to get on the Sporty. He loves my Bike, and some day it will be his.:clap
Alright, I couldn't take it any more....
I just sent you a $100 to put towards a real bike for this guy!!!!!
He's already too tough to ride a girl's bike....:roflblack:roflblack:roflblack
God bless you all...:wonderlan :wonderlan :wonderlan
Panther 19th March 2008, 16:02 Alright, I couldn't take it any more....
I just sent you a $100 to put towards a real bike for this guy!!!!!
He's already too tough to ride a girl's bike....:roflblack:roflblack:roflblack
God bless you all...:wonderlan :wonderlan :wonderlan
:whisper Look Snowman the little face is wispering to the other head about the girl's bike, I wonder what he, or she is saying:dunno:urock Thank you my friend for helping us fight CANCER:banana
snowman 19th March 2008, 16:12 Glad I could help out in some way....:wonderlan :wonderlan :wonderlan
ParrotHead 22nd March 2008, 03:56 Panther,
as promised, got my bonus and donated another $100.
Panther 22nd March 2008, 04:23 Friday 3/21/2008
Okay, time for an update. Eli had a good appointment at the clinic today. When we arrived the nurse checked his blood pressure, and it was a little high. While on steriods Eli's blood pressure does go up a little. Then the nurse put on the numbing cream so she could start the IV line, and YES! she did it on the first try :-) Eli then got the Doxorubicin, then the Vincristine. Eli's blood counts still look GREAT! and we know what's ahead. Eli has started shaking pretty bad in the morning (his hands), this is a reaction to the (DEX) steriods. Eli also has the typical mood swings now another reaction to the (DEX). All in all things are good, and we continue to pray Eli will get through this phase without suffering. Please continue to pray for Eli.
Panther 22nd March 2008, 04:24 Panther,
as promised, got my bonus and donated another $100.
YES!! you are a man of your word my friend:laugh
ParrotHead 22nd March 2008, 04:28 Friday 3/21/2008
Okay, time for an update. Eli had a good appointment at the clinic today. When we arrived the nurse checked his blood pressure, and it was a little high. While on steriods Eli's blood pressure does go up a little. Then the nurse put on the numbing cream so she could start the IV line, and YES! she did it on the first try :-) Eli then got the Doxorubicin, then the Vincristine. Eli's blood counts still look GREAT! and we know what's ahead. Eli has started shaking pretty bad in the morning (his hands), this is a reaction to the (DEX) steriods. Eli also has the typical mood swings now another reaction to the (DEX). All in all things are good, and we continue to pray Eli will get through this phase without suffering. Please continue to pray for Eli.
:bananaGlad to hear he is doing well.:banana You have a special son and seems like he has some special parents.
stealthammer 22nd March 2008, 04:37 :bananaGlad to hear he is doing well.:banana You have a special son and seems like he has some special parents.
+1 to that!!!
:banana :banana :banana :banana :banana :banana :banana
Panther 24th March 2008, 19:04 Monday 3/24/2008
Hi their friends, As you know Eli has his very own Eli and Alex's Lemonade stand that he's very proud of. The photo of his stand was posted on www.alexslemonade.org site. After a day or two we were contacted by a member of the site for a HEROE'S story about Eli. I decided to visit Alex's site to find on the front page was Eli's story :-) Please take a moment and visit this wonderful site, and read Eli's story as well as other HEROE'S.
shame 24th March 2008, 22:29 I have been following this thread since it started. I can feel the love that the Matthews family have for not only their son, but all children affected by this horrible disease. I've asked myself if there is more that I can do to help. Since I have already met the original challenge I would like to propose one of my own.
I will match the next (4) $25 donations to this worthy cause.
Everything we do to help seems to brighten their world more and give them the hope they need at a time like this.
Keep the faith!
64physhy 25th March 2008, 02:55 That's a great write up on Eli. I tear up every time I read more of his story.
Brad 25th March 2008, 02:58 I'm thinking in about a month and a half, I may just be thirsty for a little lemonade...5/10 - right?
Panther 25th March 2008, 15:37 I'm thinking in about a month and a half, I may just be thirsty for a little lemonade...5/10 - right?
883xl, yes May 10th from 10 a.m. to 1:00 p.m. we will be set-up over at Camerons Hardware. After you get through the town of Oxford, go about 1 mile at the most and you won't miss us. Camerons is down on the right. I hope you can make it. Hey we will be having a benifit on April 5th in Oxford. A rock band, dj, beff, bear, wine, and a great time for a great cause. The tickets are $25.00 it will be from 6 to 11 p.m. Let me know is you want to :rockband
Panther 25th March 2008, 20:46 Tuesday 3/25/2008
Friends, please read this. Tish Foster RN from the Oxford Area High School wrote this. Eli, and Austin our wonderful boys.
Okay team – sorry for the bullets but I can no longer think in paragraphs:
Filming on Tuesday, March 25
Bob has the permission required for James Moore and Greg Hudler (students & really nice kids) and has organized them for the filming.
James & Greg are going to meet Sherry at JB about 12:00 and film Eli in his class.
Sherry will get everything okayed with Mrs. Baity (teacher).
Mrs. Matthews will take Eli to ER about 12:25.
James & Greg will meet Maryjo at ER and film Eli and Austin at about 12:30.
Maryjo will select an area inside if the weather is bad. Location indoors or out will be away from the other students.
Maryjo will okay everything with Austin’s teacher.
Sherry and Maryjo will obtain permission form Linda and Nicole. Dave has already given his blessing.
Kim, the information for the posters and the photo consent forms are in your mailbox.
There are photo consent forms on file for Eli at JB and Austin at ER
Art – I think this is a very new worthy story – how often do you see high school students join a 1st grader and his family to fight against cancer, how often do you see administrators, teachers, counselors and nurses from three separate buildings coordinate efforts to make a project the kids want to do happen? OASD at it’s best. Kim Webber would be the contact person for Penny Wars for Leukemia information.
In case you are wondering, the cc is to the Matthew’s (Eli & Austin’s family).
Steven Spielberg look out …..
Tish
Tish Foster, RN
Certified School Nurse
Oxford Area High School
Panther 29th March 2008, 14:52 Saturday 3/29/2008
Okay, time for an update. Eli had a good appointment at the clinic on Friday. When we arrived the nurse put the numbing cream on both his hands, then checked his blood pressure, and it was a little high. While on steriods Eli's blood pressure does go up a little. Then it was time to start the IV line, and the first try did not work so she tried the other hand and got it. Eli then got the Doxorubicin, then the Vincristine. Eli's blood counts are dropping as expected. We know what's ahead. Eli is still shaking pretty bad in the morning (his hands), this is a reaction to the (DEX) steriods. Eli also has the typical mood swings now another reaction to the (DEX). All in all things are good, and we continue to pray Eli will get through this phase without suffering. Please continue to pray for Eli.
sportyblue 29th March 2008, 18:27 Thanks for the update.
Without suffering is the key............
Panther 1st April 2008, 16:02 Tuesday 4/1/2008
Eli’s blood counts are dropping; as a result he is getting tired, and a little weak; closer to the evening hours. (Eli does not complain at all) he just keeps wanting to play, or hang out as if nothing can slow him down. Eli is still going to school for half days, and he is doing well so far, but when Ruth dropped him off today she had a very hard time leaving him their. Eli’s hands are bruised and getting worn out from all the needles, but we still believe this was the right decision over the port. Eli has a break in treatments at this time. On Friday the 4th he will have his blood counts checked, and we pray no transfusions will be needed. No chemo will be done on Friday, and Eli will start to come off the steroids slowly to prevent any negative reactions. The steroids have Eli swelling up pretty bad, and he wants to eat everything in site. Eli had a pop tart for breakfast, bowl of cereal, and a hunny bun. (Eli got his own bowl out of the dish washer, spone, and milk he also got his own hunny bun out to eat. He was so proud that he did this with no help :-) Eli wants to eat, eat, and eat. Eli is in his 4th week of delayed intensification phase of treatment, and will have major Chemotherapy on Friday the 11th as long as his blood counts re-bound by then. Thank you all for your continued prayers, and thoughts for our sweet boy Eli.
ParrotHead 2nd April 2008, 05:07 Our thoughts are with you, Eli, and the rest of the family.
Lets hope Eli recovers so he can have the chemo on the 11th to kick this thing out of his system!
Panther 5th April 2008, 02:58 Friday 4/4/2008
Hi their friends. Today was Eli's appointment at the clinic no IV'S needed today they did the blood draw from his finger. They weighed him, (he gained more weight) checked his height, and Blood pressure. Eli's blood pressure was high, this is due to the Steriods. By the way tonight would have been Eli's last dose of steriods, but the doctor will allow for a few more days at a much lesser dose. This will be better then an abrupt stop, we bELIeve. The GREAT news is Eli's blood count were fabulous; as the doctor put it :-) Eli is swelled up, and it's so upseting to see what these steriods do. Eli has had a bad cough for a week or so, and said his left ear hurt. The doctor checked his lungs and they were clear, but put him on amoxicillin beacaue he has the start of an ear infecton. The last thing Eli needs is for this to get worse, and bring on a fever this would put him in the hospital. All in all our brave little guy is doing well. Please keep those prayers going, they work. Love the Matthews Family. If you want to see Eli's photos, and more stories go to www.carepages.com register it's free then type in BraveEli just as it read no space.
Panther 8th April 2008, 03:15 4/7/2008
Ruth had to take Eli to the clinic today, he is coughing most of the time. Eli's lungs are clear thank god. Some cultures were taken to see why he keeps coughing. As I type this Eli is sleeping, and not coughing so that's a good sign :-) Eli is so wonderful, and we love him so much we just want his swelling to go down because it makes it hard to breath his tummy, and face are swelled up more this time then the last time he took steriods for 28 days. Eli took his last does of steriods today, so within the week the swelling should go away. Austin is such a great BIG brother to Eli, and he's a wonderful boy we love him so much and know he is going through a lot as well. Take care love the Matthews famly.
sportyblue 8th April 2008, 05:58 I am so glad you mentioned Austin.....I guess I didn't know or realize or remember Eli had an older brother. This brought tears to my eyes man.....I'm going to start including Austin in my prayers too.....you know he has got to be going through some hard stuff himself. It must just be awful and hard to see Eli in such a state....... with the swelling. Hang in there......... you are doing a great job!
Panther 8th April 2008, 20:57 4/8/2008
Eli does have the flu, the clinic called Ruth with the news around 1:30 p.m. I'll send more information in the next day or so. Please pray this does not get worse for him. Love the Matthews family.
Panther 11th April 2008, 01:59 4/10/2008
Eli will have a Spinal tap in the morning as long as his blood counts are up. I bELIeve they are. Eli will get the (IT MTX) Intrathecal Methotrexate in his spinal fluid. Eli will also get the IV Chemotherapy about 4 hours of (CPM) Cyclophosphamide. Eli will also get (TG) Thioguanine, and (ARA-C) Cytarabine. We will give Eli this shot at home for Sat, Sun, and Mon. As you can see this is a major appointment. Please pray Eli has no negative reactions to this treatment. Eli has lost most all of his hair at this time. Love the Matthews family.
Brad 11th April 2008, 02:05 Tell Eli that having no hair just makes him look more like one of us motorcycle dudes.
And tell him that I'm getting thirsty for my lemonade!
ParrotHead 11th April 2008, 03:39 Tell Eli that having no hair just makes him look more like one of us motorcycle dudes.
Hey, I resemble that remark :laugh
Hang in there Eli! Your a tough guy! Our thoughts are with ya...
Panther 12th April 2008, 16:49 Tell Eli that having no hair just makes him look more like one of us motorcycle dudes.
And tell him that I'm getting thirsty for my lemonade!
I'll tell him my friend.:clap
Panther 12th April 2008, 16:50 4/11/2008
We went to the clinic, and Eli's blood counts were GREAT!! The doctor did not go forward with the chemotherpy today because of Eli getting over the flu. Eli is swelled up a lot from the steriods, and he still has a cough. The doctor was also concerned about his blood presure it was 150/over something. All that we know is it's high. The steriods cause this effect. Eli has been in severe pain for the past couple of days (both legs, and left arm) so the doctor has us giving him Tylenol with Codeine. (the VCR Vincristine causes this). Eli is doing so well with the treatments we are so very proud of him.
firemedic1498 12th April 2008, 17:08 Hey Panther,
Just sent a donation to your team. Let Eli know that my family and I am praying for him. God Bless and hang in there.
Sincerely, Neil
Panther 17th April 2008, 15:02 4/17/2008
Eli will have a Spinal tap in the morning as long as his blood counts are up. I bELIeve they are. Eli will get the (IT MTX) Intrathecal Methotrexate in his spinal fluid. Eli will also get the IV Chemotherapy about 4 hours of (CPM) Cyclophosphamide. Eli will also get (TG) Thioguanine, and (ARA-C) Cytarabine. We will give Eli this shot at home for Sat, Sun, and Mon. As you can see this is a major appointment. Please pray Eli has no negative reactions to this treatment. Eli has lost his hair, and had some questions about the scar that goes from ear to ear across the top of his head. Ruth, and I explained to him that when he was 10 months old he had a BIG! surgery, for craniosynostosis of his metopic suture at (CHOP) and everything went GREAT! Eli just looks, and says oh okay. This little guy has been through so much; it's just so hard at times wondering why our baby, why any child should have to go through this? We must find a cure together so none of our childrens children would ever wake up one day to find out they have CANCER! I hope one day the cure is found. It might be as simple as a shot like a flu shot that goes in, and finds that CANCER cell and DESTROYS it before it has a chance to grow, or multiply. Please pray that everything goes well tomorrow, and no negative side effects happen. Love the Matthews family.
ParrotHead 17th April 2008, 15:58 Thoughts are with Eli to fight through this.
Panther 17th April 2008, 20:18 Thoughts are with Eli to fight through this.
Thank you for your thoughts, and prayers.
stealthammer 18th April 2008, 16:19 The bELIeve Team just broke
$7000
:banana :banadanc :banana :banadanc :banana :banadanc :banana :banadanc :banana
Thank you XLFORUM!
Panther 19th April 2008, 04:16 4/18/2008
First of all thank you all for your thoughts, and prayers for Eli. Today was a long but good day. We got to the clinic at 8 a.m. they checked Eli's weight, height, and blood presure. Eli's blood presure came down from the 151/? a week ago to 131/83. The next question that came our way was do you want to do the finger poke to check Eli's counts? I said no go right to the IV because I know they are fine. The nurse started the IV, and the results came in with the nurse and the nurse practitioner (Pattianne) said Eli's counts are Fabulious. Next they started the IV fluids because Eli needed to be on them for 1-hour prior to getting the (CPM) Cyclophosphamide. Eli was having sever pain in his left arm. Pattianne ask from a scale of 1 to 10 what was it? Eli said it was (11) so they gave Eli morphine for the pain. Then Eli had the spinal tap with the (IT MTX) Intrathecal Methotrexate in his spinal fluid. Eli told us he likes the spinal taps because it's so relaxing :-) Eli is awake during these with only 1 dose of versit, and 1 does of fentanol. Now it was time for the (ARA-C) Cytarabine. After the (ARA-C) they started the (CPM) Cyclophosphamide, and three more hours of IV fluids. We were at the clinic from 8 a.m. to 3:30 p.m. The day went GREAT!, and we are so very proud of Eli. Austin was so good as well he spent the day with Eli, and at one point while Eli was laying on the bed after the Spinal tap I saw him reach out and hold his BIG! brothers hand :-) Ruth gave Eli his (TG) Thioguanine at home. We will give Eli the next three (ARA-C) Cytarabinethis shots at home for Sat, Sun, and Mon. This will be delivered Saturday a.m.. As you can see this was a major appointment. Please pray Eli has no negative reactions to this treatment. As you know Eli has lost his hair, and on Friday when Ruth took Eli to school she said Eli you left hyour bandana at home. Ruth ask if he wanted to go back for it, and he said no. So Eli with that beautiful bald head scar and all went right up to his class room to get to work. Around 12:30 p.m. I get a call from Eli and he said dad I had a great day at school, and you know 2 boys were sitting beside me in music class, and said WOW! Eli that SCAR is cool. Eli just laughed and thought that was so cool. Check out the photo gallery and see what Eli did when he got home after all of this chemo. Took his jeep for a ride, and helped plant a tree. One more thing the town of Oxford has the little league parade on Saturday morning. Eli was ask if he could bring his Eli and Alex's lemonade stand to the tipton field, this is the location the parade will end. Eli was also ask if he would like to through out the first pitch for the little league opener. Eli said he would like to do that so lemonade it is. Thank you all so very much for all your prayers. Love the Matthews family. One more thing, a little princesses by the name of Carly will be going through this same procedure on Monday. Carly will soon be five. Please pray that things go smooth for her on Monday.
sportyblue 19th April 2008, 05:17 Thanks for the update. Things are sounding very positive. The brothers will surely have a close bond forever.
I will add Carly in my prayers. There is also little Kaitlyn ( I keep her in my prayers )... she had a kidney transplant....she is so so sweet looking....the last I checked she was doing really good. Her Grandpa was on here at one point.
Keep your chin up you're doing great. :)
Moe47 19th April 2008, 16:28 Thanks for the update. Things are sounding very positive. The brothers will surely have a close bond forever.
I will add Carly in my prayers. There is also little Kaitlyn ( I keep her in my prayers )... she had a kidney transplant....she is so so sweet looking....the last I checked she was doing really good. Her Grandpa was on here at one point.
Keep your chin up you're doing great. :)
Hey Panther, I read your update late last night and could not find the words... sportyblue pretty much nailed it.
Good luck Dude I think about Eli and your family often.
:tour
Brad 19th April 2008, 17:42 4/18/2008
... One more thing the town of Oxford has the little league parade on Saturday morning. Eli was ask if he could bring his Eli and Alex's lemonade stand to the tipton field, this is the location the parade will end.
I took a cruise down to Oxford this AM but I didn't find the lemonade stand. I think I got there a little late. Oh well, ask Eli to save me a glass, I'll be there 5/10~:tour
Panther 20th April 2008, 03:19 Hey we will see you on the 10th of May. You will get that Lemonade. Hang in their my friend.
Panther 20th April 2008, 04:07 4/19/2008
What a great day we had. The morning started with making the lemonade for the 1st held Eli and Alex's lemonade event. We were at the Tipton field at 9 a.m. waiting for the parade to arrive. When everyone got there we were ready. The donations started coming in and at the end our boy's raised well over $500.00. This was raised in 1 hr. This money will go to the Alex's foundation. We are helping fight child hood cancer one cup at a time. Eli also got to throw out the first ball to the mascot. That dog had a hard time catching the ball with those paws of his, but Eli was on target. I want to tell you about the Oxford area high school for a moment. As you know they are in a war the penny war. So when one young lady Brianna Shannon saw the lemonade stand for the first time I saw the look on her face of how could this be, and how can I help. She talked to Eli and also explained how proud she was of him, and gave me a hug and told me she will be thinking of us. Brianna then helped us load up the van after the event. And yes my boys thought she was so pretty :-) These guys are something else. I wonder ware they get it???? When we got home I knew it was going to be time very soon to give Eli an injection of (ARA-C) cytarabine. This was the first time I would have to do this so I put some numbing cream on the site I was going to give the chemo, and waited for that to work. I then put on the rubber gloves on like a doctor and gave him the injection. Eli did very good as always. I will tell you I was in the gulf war, and found that eaiser then giving a shot in my sons arm, but as a parent you must find your way through it and I did. Please keep Eli in your prayers. Love the Matthews family. I posted some new photos in the gallery.
RoadChick 20th April 2008, 15:20 Thanks for the update.
I will keep Eli in my prayers.
Panther 21st April 2008, 19:37 4/21/2008
Okay I just talked to Eli, and he is doing very good. Ruth gave him his (ARA-C) Cytarabine injection, and all went well. The next round of these injections will start Friday the 25th. All in all Eli is doing GREAT!!! he is so brave, and strong he is my true hero. Eli should return to school tomorrow. Ruth and I will continue to send him as long as he can go. We found that him going to school keeps his spirt up, and he loves to see his friends. Love the Matthews Family.
bplinson 21st April 2008, 19:40 Thanks for the update. Eli is a amazingly strong young man!
Panther 23rd April 2008, 15:41 4/23/2008
Hi friends, and family. Eli is back in school today with his friends. Eli is starting to get tired, but going to school for half days does him good. His teacher Ms. Baity said he is doing so well, and they missed his smile on Friday, and Monday :-) Tuesday the school was closed so he did not miss that day, and last Friday was his all day Chemo treatment at the clinic. This friday Eli's appointment is at 1:30 p.m. he will have his blood counts checked, and recieve his (ARA-C) shot. Ruth and I will need to give Eli this shot again on Saturday, Sunday, and Monday. We will need to take Eli to the clinic on Monday, Wednesday, and Friday of next week so they can monitor his blood counts to prepare for the blood transfusions. Please keep Eli in your thoughts, and prayers. Love the Matthews family.
Panther 26th April 2008, 02:53 4/25/2008
Hi family and friends,
We went to the clinic today and Eli's counts are hanging in there. They typed and crossed him for possible transfusions next week. He had a low grade temp of 99.5 but his blood pressure has come back down to normal since he is off of the steroids (118/70). He is taking two medicines right now and the combination is causing him to not want to eat and its a real chore to get him to drink anything at times, but he tries. The doctors said he is looking really good and everything is going according to what they expect. We go back next week on Monday, Wednesday and Friday to check his counts and get possible transfusions. He came home today after the clinic and went to sleep for several hours. He did go to school today. He missed yesterday because he had vomited on Wednesday night so I thought it best to keep him home the next day for rest. We just don't like the fact that he doesn't want to eat anything. He has only had half of a poptart and half of a sandwich the entire day. He just got a splash of applesauce with his medication though. I guess we can count that. When they took his blood today they had a hard time finding a vein, so they didn't want to use the numbing cream for fear the vein they found would disappear so he got poked today without any . He didn't like it very much. The two nurses were very nice though, but he still was very upset, but yet a very brave boy. He was able to get the numbing cream for his ARA-C shot though. But he said he could still feel it. I asked him if he had SSSP. He said what's that? I said Super Sonic Sensory Perception!!! I got a smile out of him anyway. It's good to distract him as quickly after the shot as possible so he forgets about it. We still have to give him the ARA-C shot this weekend. Once on Saturday, Sunday and Monday and then he is done with those. He will get the 6-TG medicine the remainder of the week at bedtime, and then he will have two weeks off with no medications except for his Bactrim on Monday and Tuesday.
Moe47 26th April 2008, 16:14 You're almost through the worst part. I know its tough trying to get kids to eat when they don't wanna, but you have to keep him hydrated. Hydration is the key not only to keeping his veins up but to also lessening the other side effects.
Offer him lots of liquids and explain to him that is what will keep his veins up so the nurses can use the numbing cream when they poke him.
I watched my cousin go through chemo its no fun for anyone but I learned a little.
Stay strong.
:tour
Panther 28th April 2008, 16:16 4/28/2008
Hello friends, and family. Ruth took Eli to his 9:30 a.m. appointment at the clinic. After they checked his blood counts they found his White cells to be 0.9. The white cells fight infection so Eli won't be in school this week. We will need Ms. Baity his teacher to do some home schooling. The red blood cells are low to the point of a transfusion so the blood is on it's way from (CHOP). Eli was prepared for this so he is fine with it. Ruth is working with Eli on his home work while they wait. Ruth will need to give Eli his (ARA-C) shot today at 3:00 p.m. This is the last one of these we need to give. Between the (ARA-C) and the 6 TG we have been giving Eli these are the 2-Drugs that will bring his white cells to zero, and his bone marrow will stop producing. Eli's energy is still up even with his low blood counts. Let's face it the kids amazing :-) Please keep those prayers going, they work. Love the Matthews family.
shame 29th April 2008, 01:30 A special prayer tonite, just for Eli...
Plus a trip to donate blood tomorrow...
Keep the faith!
Panther 30th April 2008, 16:05 4/30/2008
Well it's Wednesday, and Eli is home from school this week because of his blood counts. Eli's wonderful teacher Ms. Baity came over to home school Eli at 6:15 p.m. last night, she will be back tonight. Ms. Baity said Eli is doing so well, and she is very happy with him. She is a teacher I'm sure Eli will never forget :-) Eli is doing so well, he is so amazing, and is such a fighter. Ruth was told by the doctors at the clinic that they would not need to see Eli today. They said if he get's a fever, or if he get's pale in color to bring him in. When I got home last night I ask Eli did you take a nap today? Eli said no. So around 10:00 p.m. Eli said I'm not sleepy, so I said okay lay down and I'll be right back. Well I came back 2 or 3 minutes later, and he was sleeping :-) Ruth, and I are so very thankful to all of you. Please keep Eli in your thoughts, and prayers. Love the Matthews family.
ParrotHead 30th April 2008, 16:45 Glad to hear Eli is doing well. Tell him to keep fighting to kick this thing's butt!
It is also great to hear of the support he is getting from his teacher. She deserves a hearty thank you as well!
As always, thoughts are with Eli and the entire family.
Panther 2nd May 2008, 19:12 5/2/2008
Ruth just got home with Eli from his appointment at the clinic. Eli's blood counts are real low at this point. His white cells are 0.3 red cells 3.75 and platelets are at 64 also his ANC is now 30 .... With all that said Eli is nutrapenic, and has been for over a week. This means he can't fight infection. It also is okay because we expected this, and Eli is well aware that his numbers would, and will continue to drop to zero. We are preparing for a trip to (CHOP) this weekend as we are on the look-out for signs of his platelets going under 20 if this happens he will need a platelet transfusion, and we believe this could also lead to a red cell transfusion if they continue to drop. Eli did finish his last dose of (6-TG) Thioguanine last night so we continue to move forward as this battle continues. Eli will win this war with CANCER!!! he is a fighter, and CANCER STINKS!!!!! All of this we are prepared for and we understand what’s ahead. Eli just got home, and with these numbers he should be sleeping, but not our Eli he is out on his battery powered tractor burning rubber with his hands off the steering wheel laughing :-) Eli will not have any Chemo for 2-weeks. This is strange to Ruth, and I because of all the meds we give him daily. Eli will only receive Bactrum Monday, and Tuesday for the next 2-weeks. After his numbers reach a certain point he will be in the maintenance phase of his treatment. Please continue to pray for Eli as we travel this road.
Still planning to come down on 5/10 (my birthday BTW) for some Lemonade. So I hope I can meet my new friend that I haven't met yet (Eli). May get a mohawk for the occasion, but that's not as radical as it used to be.
Not sure what bike I'll be on, but I'll be there!:banana
D-Rock 3rd May 2008, 04:24 God bless you, Eli, and the rest of your family.
stealthammer 4th May 2008, 15:06 Paul,
It is great to hear that the harshest part of the chemo is over and that Eli's system tolerated to as well as it did. Eli and your whole family will remain in my thoughts and prayers until this battle is won.
I finally got a chance to catch up on some updates today and thought I would share a couple of picture.
http://xlforum.net/photopost/data/917/P1465395_FS.jpg
http://xlforum.net/photopost/data/917/P1438023_FS.jpg
Grind N 4th May 2008, 18:32 Panther, and all other's touched by this disease,
You don't know me, as I am new to this board. I just wanted to offer my prayers for you and your family and anyone else who's life is marred by this disease. My wife is the fundraising chair for Relay for Life in Coshocton County, Ohio. So, she is very busy right now with all of this....indeed it is for a good cause. It does take everybody to battle this. I am proud of her and anyone else who volunteers their time to go out and take an initative for the cause. Stand tall and strong...God will be on your side....even though it may not seem that way right at the moment. You are there for your son....that is all he needs right now.
ParrotHead 6th May 2008, 04:54 Still planning to come down on 5/10 (my birthday BTW) for some Lemonade. So I hope I can meet my new friend that I haven't met yet (Eli). May get a mohawk for the occasion, but that's not as radical as it used to be.
Not sure what bike I'll be on, but I'll be there!:banana
Buy a glass for the wife and I if you'd be so kind. I will be on my way south on Saturday and cannot make it. (My birthday is Sunday btw)
sportyblue 6th May 2008, 05:01 Panther.......thank you for the update. Eli and his family continue to be in my prayers....always.
Stealthammer.......thank you for posting those recent pictures.
Panther 6th May 2008, 17:14 Buy a glass for the wife and I if you'd be so kind. I will be on my way south on Saturday and cannot make it. (My birthday is Sunday btw)
Thank you, we will do that for you. No problem. :clap
Panther 6th May 2008, 17:18 Stealthammer, thank you so much for posting those photos. Eli, and my family are looking forward to meeting you on May 13th.
Panther 7th May 2008, 03:24 5/5/2008
Hello everybody! We went to the clinic today, all prepared for a transfusion..............but there wasn't one needed! Eli's platlets have not dropped low enough yet. They have to be 20 or below and they were 49. His white cells went up a small amount from 0.3 on Friday to 0.9 today. His ANC went up too. Pattyanne said that sometimes it takes longer for some kids to drop in counts, which usually means they stay "down" longer! She said there isn't anything to worry about, but just be prepared that it may take longer for him to come back up once he hits bottom. But we don't mind as long as that awful leukemia is being killed off! We like all of our nurses and doctors at the clinic so it isn't a bad trip to take. Eli's appetite could use a little bit of improvement, but it all comes with the territory. We came home from the clinic and he got on his tractor and rode it for a really long time, having a great time! He is so cute, he looks like he's meant to drive a tractor in a field somewhere. OH, on the way home, we stopped to take a picture of some baby colts with their mommies! They were so cute and Eli really thought it was wonderful to see such small horses. Eli is such a happy person. Hardly nothing gets that boy down. He surely is a gift from God that we are thankful for each and every minute of everyday. Please continue in your prayers for this wonderful angel of ours. God surely has a plan in store for him. Love, Ruth, Paul, Austin and Eli
ParrotHead 7th May 2008, 03:38 Panther,
I'll be honest and say I have no idea how good this news is, however from what you describe of Eli he sure sounds like a normal kid to me. And being normal with all of this going on is nothing short of amazing. Thoughts and prayers are with Eli and the entire family.
Panther 8th May 2008, 23:50 5/8/08
Hi family and friends,
Eli and I went to the clinic this morning, and got a finger ***. When we got there Marilyn was going to do a finger *** and I asked why, because Pattyanne had said he would need a transfusion by Thursday. Then the IV nurse came in and explained that if he needed a transfusion we would have to go down to the hospital because there wasn't going to be a doctor there past 11:00am. I said I wasn't aware of that so I said to just go ahead and just do the finger *** and get the counts and if need be go to the hospital and they could put in the iv. The past two times to the clinic an iv has been put it anticipating a transfusion was needed. So the finger *** was done and the numbers came back higher than Monday! Dr. Stern thinks he may have already bottomed out as far down as he is going to go and now he may be producing his own new cells. The only thing that did go down is the hemaglobin. Dr. Stern decided to wait until Monday to type and cross for a possible transfusion on Tuesday. She said he may not need one but she will look again at the hemaglobin, and just give him a transfusion to give him a little boost/help getting his numbers up. The more they go up, the closer we are to maintenance!!!!! He looks good and feels good except for a bad appetite. He doesn't want to eat hardly at all. We keep the fluids going though. So everyone, we ask that you keep praying for him and thank you for all of the prayers you have already said for Eli. All in all he is doing really well. He helped plant out cucumbers and tomatoes yesterday, using his tractor to haul things around the yard. He watered the new plants and washed out the cargo area in his tractor. He also assisted in hanging the plants in the baskets on the front porch. He's a busy guy! What a boy!!!!! :clap:clap
Love the Matthews Family.
ParrotHead 9th May 2008, 03:07 :clap:clap Sounds great! Keep going Eli! :clap:clap
:banapart:dancesmil
Also if you are around the Oxford area May 10th stop at Camerons Hardware FROM 10 A.M. TO 1 P.M. for some of Eli and Alex's Lemonade so we can fight this childhood cancer "ONE CUP AT A TIME"!
I'm planning to make the trip tomorrow. Hope to see a few of ya there if you can make it!
:banapart:banapart
ParrotHead 10th May 2008, 02:11 Bump ...
:tourI'll be thinking of you guys tomorrow on my way to Key West.:tour
Eli, I'll take a few pics for you if we make it.
And I ran into these guys!
http://www.bweir.com/pix/lemonade_051008_800.jpg
It was nice to meet Paul and Austin. Eli was home, but I rode by his house and tried to be as loud as I could. Maybe he heard me! :wonderlan
So who's going to be there next week?
P.S. Anyone notice the patch that Panther has on his left side?
Panther 11th May 2008, 02:11 And I ran into these guys!
http://www.bweir.com/pix/lemonade_051008_800.jpg
It was nice to meet Paul and Austin. Eli was home, but I rode by his house and tried to be as loud as I could. Maybe he heard me! :wonderlan
So who's going to be there next week?
P.S. Anyone notice the patch that Panther has on his left side?
It was so great to see you, and your sweet ride :tour today at the Eli and Alex's Lemonade stand event. Eli said thanks for the donation to help fight childhood cancer :banadanc The motorcycle you got for Eli he took it outside with him, in the car, and yes he is sleeping and it's under his hand. :clap:clap:clap:clap You made his day :banadanc ... Eli will be at the Relay for life on Saturday when we all come thundering in. Eli is looking for a lot of bikes to roll in :tour:tour:tour:tour I LOVE MY XLFORUM PATCH. I GOT IT FROM STEALTHAMMER, AND IT'S THE MOST IMPORTANT PATCH I HAVE BECAUSE OF ALL OF YOU.
Likemlouder 11th May 2008, 03:59 been reading the posts on eli being a pastor i am with families who are batteling cancer every day we will put eli on our prayer list and a check in the mail Praying all Gods Best for you and your family
decman 11th May 2008, 05:25 Well, you know I will be there on Saturday.
It will be a great run no matter what.
The great thing I have noticed is that Sportster riders seem to stick together
more than any other group I've ever known. Now patch holders and MC
member are in a class by themselves but in the loose formation that we
ride in, no one beat the Sportster rider.
Show your support to more that a casual bike thing...
Show up and be with us all, riders and survivors.
Declan
stealthammer 12th May 2008, 05:38 Paul sent me some new pictures today of Eli's first ride on a Sporster today and asked me to share them with everyon here. It looks like they were having a GREAT time:
http://xlforum.net/photopost/data/917/medium/Picture_593a.jpg
http://xlforum.net/photopost/data/917/medium/Picture_596.jpg
http://xlforum.net/photopost/data/917/medium/Picture_597.jpg
sportyblue 12th May 2008, 06:17 Thanks for posting them. Father and son....what awesome pictures.
Hold on good and don't let go......falls right over into real life........
Moe47 13th May 2008, 00:31 That is absolutely the best thing I have seen for a long time.
:tour
Panther 13th May 2008, 03:29 You're almost through the worst part. I know its tough trying to get kids to eat when they don't wanna, but you have to keep him hydrated. Hydration is the key not only to keeping his veins up but to also lessening the other side effects.
Offer him lots of liquids and explain to him that is what will keep his veins up so the nurses can use the numbing cream when they poke him.
I watched my cousin go through chemo its no fun for anyone but I learned a little.
Stay strong.
:tour05/12/08
Hello everyone,
Eli went to get his blood counts today and we will be going back tomorrow for a transfusion. His ANC was lower, and his red cells were slightly lower, and his hemaglobin was too. But according to the doctor this is expected and the blood tomorrow will give him a boost! He is making his own cells again now, :clap:clap:clap:clapand this is good news. :laugh:laugh:laugh:laughHe did especially well today, I am so proud. His nurse used a butterfly needle to collect the blood and he didn't use any numbing cream, :banadanc:banadanc:clapjust breathed calmly and then it was over. He of course had me and Puppy to hang onto also for support! We have another appointment on Friday, because Dr. Stern wants to see if he is able to have a spinal tap and vincristine, which will be the beginning of the maintenance phase. It is sort of unreal that we are getting this close. This has been a rough 6 months (on the 15th) that Eli has been battleing leukemia, and we have that certain "safety net" feeling by going to the clinic every week to get reassured and checked, and now we will be going every four weeks! This is a good thing!!! We just have gotten so used to the reenforcement of all the wonderful nurses and doctors we have been blessed with. We again, want to thank all of you for your continued prayers for Eli, and we ask that you keep him in your prayers, as we grow closer to this phase. This boy is the bravest, most wonderful blessing in the world. Austin is the best BIG brother that any one could ask for. He and Eli are true Pals as we see it, and we are very blessed to have them in our life. Love, Ruth, Paul, Austin and Eli
Panther 14th May 2008, 11:48 05/13/08
Eli's transfusion went very smoothly today. We got there, we got his numbing cream on, iv went in great (Michelle, his nurse today, named his vein "Bessie")and then he got his blood. We watched Ice Age and that made the time go faster, and by the end of the movie, we only had about 10 minutes left and then out the door we went! He did absolutely great! I then took him over across the street and got take out Chick-fil-a and that was a nice yummy lunch for the drive home. Upon arriving at home, sunscreen went on and the driving of the tractor, jeep and bike started. I forgot today was a late school day for Austin, and Eli was anxiously waiting for the bus to arrive and even parked the tractor out near the curb so Austin could play with him right after jumping off the bus, but when I realized that was what he was doing, I told him that we had to pick Austin up today. He was a little bit disappointed but still played happily for quite a while. All that energy he has is remarkable. Well, we will be back to the clinic on Friday and hopefully starting maintenance! So keep those prayers going! Thank you again for all of your support! Love, The Matthews Family
Panther 19th May 2008, 01:31 05/18/08
Hello everyone. Sorry for the delay in updating. We went to the clinic on Friday (05/16/08) and were told that Eli's ANC was not high enough to go into maintenance yet, so we will be going back on May 23rd, this Friday (Paul's birthday) and hopefully a great birthday present for Paul would be to have Eli going into the next phase. Eli is feeling really good, except for that appetite. His white cells were still quite low on Friday so we are unsure as to whether to send him back to school or not. He did participate in the Oxford Relay for Life on Friday and Saturday. It was a great RFL and we want to tell all of the family and friends that helped, participated, volunteered, and walked that we appreciate every single one of you and treasure you in our lives. We could not be a luckier family than we are to have such support around us. We love you all. It was also quite exciting for the XLForum members to come to meet Eli in person and do a couple of laps. Eli feels very proud to be a life time member to the XLForum. He just wishes he was allowed to drive one of the motorcycles! He had a really fun time with everyone. I haven't seen him smile quite so much in a long while. And we thank you all for that as well. We look forward to having a great time next year at the Relay, and hope you all will come back and be on our team again. You are a true blessing. Maybe next year Eli and I(Ruth) can stay all night like many of you did! Well, that's about it. Paul may add something in more detail later, but I wanted to update you all on the clinic. Love, The Matthews Family
Yes I have to add that the bELIeve team helped save peoples lives. Every step we took as a team was one step closer to a cure. I won't know the total raised by our team until June 3rd during the Relay For Life meeting. I can tell you as of today we raised $12,541.00 do I need to say WOW? okay, WOW!!!!!!! Donations can be made to the American Cancer Society up to July 1st.
By the way the bELIeve team made rookie of the year for 2008. Thank's to all the members of the bELIeve team, and to this XLForum.
1st photo, Eli with Stealthammer as it was time for Stealthammer to go home. Stealthammer is one of the best people you could ever meet in your lifetime.
2nd photo, XLForum members, and friends that made it to the event. Next year I hope we have 30 to 40 bikes make it. It was so cool to have a Police escort through Oxford. Next year we will have a cook out after the event with the XLForum.
3rd photo, first lap by the bELIeve team at 4:00 p.m. on Friday the 16th.
4th photo, that's Stealthammer at my friend Dave's house; look at that fork.
ParrotHead 19th May 2008, 03:15 Sorry I missed the stand and the walk. Glad to hear Eli is doing so well. Thoughts and prayers with all of you as always...
stealthammer 21st May 2008, 05:32 The Relay for Life at Oxford was a RAGING success!!!
The bELIeve team raised a total of $12,541.00 and the total raised by all Relay for Life at Oxford teams for the American Cancer Society was $78,104.00!!!
Members of the bELIeve team walked the track continuously during the 20 hours in support of the fight against cancer, and quite a few team members individually walked for 16+ hours while also providing logistical support for the bELIeve team and the Relay event. (Several members racked up well over 25 miles even though it rained for the first 12 hours!!!) Their support for each other, and for the Relay for Life event's battle against cancer, led them to be crowned with the title of "Rookie Team of the Year". In fact, Paul (Panther) has been named as co-chairman of the 2009 Relay for Life at Oxford in his first year of participation! Congratulations Paul !!!
About a dozen XLF members arrived (with a full police escort!!!) after riding in from several other states, and they brought additional donations and walked a couple laps to show their support to the cause. They also brought some very special gifts for Eli (as the newest XLF Life Member!), and his big brother Austin (who has supported his little brother tirelessly in this battle). The Relay for Life staff and the members of the other participating teams were quite impressed with this display of solidarity in support of Paul and The bELIeve Team!!!
In the end the fundraising effort exceeded all expectations, and The bELIeve Team set a new standard for team participation (with the XLForum playing a pivotal role).
Paul and the entire bELIeve Team would like to extend a heart felt THANK YOU! to the entire XLForum for their support!
Some pictures of the event:
http://i221.photobucket.com/albums/dd133/stealthammer/Eli/Relay/Picture206941.jpg
http://i221.photobucket.com/albums/dd133/stealthammer/Eli/Relay/Picture206731.jpg
http://i221.photobucket.com/albums/dd133/stealthammer/Eli/Relay/Picture207161.jpg
http://i221.photobucket.com/albums/dd133/stealthammer/Eli/Relay/Picture207111.jpg
http://i221.photobucket.com/albums/dd133/stealthammer/Eli/Relay/Picture207141.jpg
.
64physhy 21st May 2008, 05:50 All Right!!:clap:clap:clap
I bet no BMW clubs would reach out like that.
I think it's great how so many XLF members have helped out.
Stealthammer, you are one outstanding human being.
Eli, Keep up the fight! And Austin, keep being a good wingman for your brother!
Panther, you have some great kids. I'm sure they're a direct reflection of you.
ParrotHead 21st May 2008, 12:20 Way to go everyone!
Moe47 21st May 2008, 14:58 Thanks for the reports and the pictures, I am really glad everthing went and is going so well for Eli and the team.
big brother Austin (who has supported his little brother tirelessly in this battle)
Austin - you rock Dude - way to be a great big brother! :clap
Keep up the good work everyone!
:tour
Panther 21st May 2008, 15:48 I read the post by Stealthammer, and the post after his at work. What a mistake. Now I have tears in my eyes and need to get up and regroup before any of my employees see me like this. This was a very touching time when Eli walked the survivor lap, and when we came in with the Police escort. I ask as many of you that can make it next year to please come. The Oxford Police will do the same for my XLForum brothers, and sisters they already told Stealthammer, and I that they would escort us again. Stealthammer, you are a true friend, and Eli, and my family will never forget you for all you have done for Eli, and the bELIeve team. 883xl what you did for my older son Austin was first class my friend. Eli loves his XLForum patch the best, and the money in the envelope. Eli said Daddy can I have everything in the envelope from Brad? "I said yes", and he said great! I got five of these $20.00 in here :laugh I hope to see you again soon for a ride some day :chop I will know the total raised on June 3rd during the Relay closing meeting. There was some checks turned in at the event, and I have another $50.00 check as well. We bELIeve we have the dates set for next year already May 29th and 30th. The event will be at the same location, and the same DJ that we had because he was outstanding:leekguit I plan on makeing this event something to remember as well. It's the 25th year for the Realy For Life, and it will be the 8th year in Oxford. I ask as many of you as possible to mark your 2009 calendars to be at the Redner's parking lot on May 30th at 10:00 a.m. to depart by NLT 10:30 a.m. to the Relay track with the Police escort. My best friends wife Jen will hold a cook out at their house for the XLForum members that come :danccow WOW!!! that will be out-of-control.
ParrotHead 21st May 2008, 16:42 Eli said Daddy can I have everything in the envelope from Brad? "I said yes", and he said great! I got five of these $20.00 in here :laugh
Panther, thanks for making me laugh so hard on an otherwise busy day. I had to wipe the water I was in the process of drinking off the screen of my laptop. On top of everything else, Eli is one heck of a smart kid and you will surely have your hands full when he gets older.
When he is 16 and wants to borrow the car, be sure to ask him why and where is he going before saying yes...
Take care, and thoughts with you guys as always.
Panther 23rd May 2008, 20:39 5/23/2008
Hello friends and family. Eli gave me the best birthday present ever today. We went to the clinic, and they started his (IV),then they got the blood, and tested it. 30 minutes later the nurse came in and put the numbing cream on Eli’s back J and told us Eli’s counts look GREAT!!!!! Eli’s body is producing good cell’s on it’s own. Do you know what that means??? I’ll tell you.!! Eli is now in the Maintenance phase of his treatment J Thank GOD. Eli then had his Vincristine, and then the doctor performed the spinal tap with the injection of (IT MTX) Intrathecal Methotrexate in his spinal fluid. This is how the maintenance phase works. Eli will be on Dexamethasone (DEX) Steriods for the next five days, (He will go on and off steriods for the next three years, in five day increments). We will give him (6-MP) Mercaptopurine every night until Eli is cured for life. Eli will receive Bactrum every Monday and Tuesday. This is an antibiotic to help prevent Pneumonia. The GREAT news is less clinic visits as well. Eli’s next visit is June 20th. He will go to the clinic every four weeks. During these visits, they check his blood counts, and tweak his med’s. He will also receive Vincristine through his (IV). Eli will only need a spinal tap with (IT MTX) Intrathecal Methotrexate every three months. Eli is doing so well, and we want to thank each and every one of you for your thoughts and prayers over the past six months. Please continue to pray for Eli as he continues to move forward in this GREAT phase of treatment. We want you to know we would not have made it without your support. Love Paul, Ruth, Austin, and Eli.
stealthammer 23rd May 2008, 20:58 Paul, it's awesome to hear that Eli is now in the Maintenance phase!!! I had no doubt last week that today would be the day that they changed his status, and the fact that it occurred on your birthday is just icing on the cake!
I had a great time during the Relay, and I can't tell you how much actually meeting you, Ruth, Austin, and Eli has meant to me (and meeting Dave and Jen too!). Thank you all for your hospitality and friendship. You are all very special people! See you again in '09!!! :clap :clap :clap :clap :clap
Oh yeah...
HAPPY BIRTHDAY!!!
:banana :banadanc :banana :banadanc :banana :banadanc :banana :banadanc :banana :banadanc :banana :banadanc :banana :banadanc :banana :banadanc
You and Dave ride safe. :tour
.
64physhy 24th May 2008, 00:38 Great News! Glad to hear it! Happy Birthday.
sportyblue 24th May 2008, 04:53 Great news. :clap:clap:clap:clap:clap
Happy birthday.
Panther 25th May 2008, 03:43 Take a look at these photos. Eli wanted me to share his new ride bell I bought him. Yes he picked the one with flames to match his flame bike:clap
http://xlforum.net/photopost/data/500/medium/Picture_762_Medium_.jpg
Photo #2 That's Eli on his flame bike. This is on May 23rd after he got home from his Spinal Tap, and Chemo apt. He had to ride:tour
http://xlforum.net/photopost/data/500/medium/Picture_760_Medium_3_.jpg
Photo #3 That's Eli helping me put my new license plate frame on That 883XL told me about. By the way Brad I love it:laugh
http://xlforum.net/photopost/data/500/medium/Picture_777_Medium_.jpg
ParrotHead 26th May 2008, 03:44 :banana:banana:bananaCan't believe I missed this. Way to go Eli:banana:banana:banana
Happy Birthday!
Panther 28th May 2008, 02:20 Well we hope you all had a GREAT weekend! We had a wonderful one at the Matthews house, thank GOD! As you know my birthday was Friday. I forget how old I am though :-) Ruth, and Eli made me a GREAT birthday cake, and we just stayed home and celebrated. On Saturday morning I took the boy's to North East, MD to fish, and what fun that was! Eli, and Austin caught about 10 fish each. I caught ZERO!!!! I just loved taking photos of them smiling, and having a great time together. I took some photos of a friend of our's named George. He has BIG wings. Check him out in the gallery. We fed him 4 fish. He loved them :-) Then Saturday night we decided to go to Outback for dinner. It's been 6 months since we have done something like that as a family. On Sunday we had more good times, and today as well. Eli is doing great, and is just a little tired as this is normal after a spinal tap, and chemo. Thank you all for your thoughts, and prayers. Love, Paul, Ruth, Austin, and Eli.
http://xlforum.net/photopost/data/500/medium/Picture_809_Medium_.jpg
http://xlforum.net/photopost/data/500/medium/Picture_812_Medium_.jpg
http://xlforum.net/photopost/data/500/Picture_813_Medium_.jpg
http://xlforum.net/photopost/data/500/Picture_794_Medium_.jpg
Moe47 28th May 2008, 04:12 Thanks for the pictures man, looked like a great time! The boys went catching and you went fishing.:laugh I love it!
:tour
Edit: Happy birthday!
Panther 29th May 2008, 03:01 5/28/2008
What a fun morning we had. We all got up at 6:00 a.m. and went over to the Oxford Area High School for a tailgate breakfast. The senior class had the breakfast because they raised the most money for the Leukemia Society. Eli was the honored hero for the penny war campaign. Ms Webber invited us to attend this event, and we are very happy she did. Brenda Moran a teacher at (OAHS) gave Eli six tickets to Hershey Park. Shauna Willen gave Eli 2-Pizza certificates as well as a Spongebob pillow. Anna Parker gave Eli Dorney Park tickets. Anna is a very thoughtful young lady as she wrote to Dorney Park about Eli to see if they would donate the tickets, and they did. We also want to tell Anna we will pray for her mom as she also has cancer. All of the teachers, and the students of (OAHS) should be proud of what they did to help fight this disease. Love the Matthews Family.
http://xlforum.net/photopost/data/500/medium/Picture_834_Medium_.jpg
http://xlforum.net/vbportal/forums/attachment.php?attachmentid=15377&stc=1&d=1212111357
Panther 2nd June 2008, 20:09 6/2/2008
Hello friends and family. I hope everyone had a great weekend Eli is doing well, but I think he just wants to do so much simply because he's such a tough little guy. On Saturday we went to a ball game in Reading, P.A. the team was the Reading Philly’s. Austin got to throw out the first pitch, what a good job he did. My boss Jeff gave Austin a ball signed by the team, and Eli was given a ball signed by their best pitcher. Jeff also gave Eli a shirt that said Brave Eli on the back with a number one. At the end of the game their were fireworks and they were out-of-control fantastic!! We got home around 10:30 P.M. Guess who was up at 6:45 A.M. ready to go fishing? Okay it was Eli :-) we got Austin up at 8:00 A.M. and went to Northeast, MD to catch some fish. This time I even caught some :-) After we got home we packed a lunch, and went out in the power vehicles well the boys rode in the vehicles, I walked :-( We found a spot to have our lunch, and I read the boys a story. Oh ya Eli took a friend for a ride in his Jeep around part of the neighbor hood. He let her drive, but she was all over the place so she let Eli take back over. She is so cute, she said the steering wheel is too tight, that Eli should drive, and he did. We thank GOD every day for giving us the strength as this last six months is now behind us. We continue to pray for the other children that are going through this same disease in their life. We hope and pray that one day no child has to go through this. Please continue to pray for Eli as the road is a long one. P.S. Eli wanted to go to school for the day on Friday the 30th so we let him. Eli said he wants to go for the whole day for the next 2 weeks until summer vacation. Thank you all once again for your thoughts and prayers. Love the Matthews family.
bplinson 2nd June 2008, 20:15 Sounds like a great time was had by all. I am so happy the Eli is doing so good!
sportyblue 2nd June 2008, 20:31 Terrific. Things are rolling along in a real positive way. You have a great perspective of what parenting is all about.......A+ in my book.
I continue to keep Eli in my prayers.
Panther 4th June 2008, 20:27 6/4/2008
Hello friends and family. Let me update you on Eli first of all. Eli is doing great, Thank GOD for that. All of your thoughts and prayers work. Last night the 3rd of June was the wrap-up meeting for the Oxford Relay for Life. I’ll tell you the bELIeve team won every award at the highest honor. This is a list of those awards.
1. Rookie of the year award 2008
2. 1st place fundraising team $13,126.50
3. 1st place individual fundraiser Paul Matthews
4. Pacesetter pin for Barry (Stealthammer), and I as the team captains for helping Oxford Relay for Life earn this award.
5. The bELIeve team also earned the highest honor of the Platinum club award for any team.
6. Plaque for the bELIeve team for our inspiration to this fight. (I gave this to Eli) because Eli is our inspiration for this fight.
7. Interstate Container received an award for outstanding contributions to the American Cancer Society for 2008
8. XLForum received an award for outstanding contributions to the American Cancer Society for 2008
I also want to thank Smurfit Stone Container for their contribution to our team, as well. You see this is a company I use to work for, but regardless of the fact I moved on they still found it in their hearts to help in this fight. We can only beat this together. Also thank you to all others that donated to our efforts. At the end of the day we helped save people in this battle. We must bELIeve in a cure.
bplinson 4th June 2008, 20:35 Thanks for the update. It is so cool that the American Cancer Society gave an award to the XLF members who contributed to this great cause.
It make me proud to be associated with such caring and giving people.
The greatest award of all will be when you break the news that Eli is completely cured!
Panther 6th June 2008, 02:49 Hi friends and family I just wanted to give you the new schedule for Eli and Alex’s Lemonade Stand.
Saturday June 7th from 2:00 p.m. – 3:30 p.m. Eli’s house front yard
Saturday June 14th 10:00 a.m. – 1:00 p.m. Cameron’s Hardware
Saturday June 14th 4:00 p.m. – 8:00 p.m. Nottingham Inn car show
Saturday June 21st 10:00 a.m. – 4:00 p.m. Nottingham Presbyterian Church for their Chicken BBQ in Honor of Brave Eli.
Saturday September 27th Apple Fest Oxford Park 10:00 a.m. – 4:00 p.m.
Please come have a cup of Lemonade to help us fight Childhood CANCER “ONE CUP AT A TIME”
Eli’s lemonade stand is registered with the Alex’s foundation. All funds raised go to this wonderful foundation. Eli has hosted 4 fundraisers to date, and is making a difference in this fight. To learn more about this go to www.alexslemonade.org all of Eli’s and other events are on the schedule on this web site.
Thanks so much bELIeve in a cure.
Paul B. Matthews
Panther 9th June 2008, 00:59 6/08/2008
wow! It’s hot, and it’s not even summer yet. Eli is having some real good days, and has a lot of energy as well. On Saturday morning we went to watch my friend Dave fly his gas powered air plane’s, then we went to one of our neighbors house for an ice cream social to say our good buy’s, they will be moving next Friday the 13th. From 2:00 p.m. till 3:30 p.m. Eli and Austin had their Eli and Alex’s lemonade stand event in our front yard. In 1 ½ hours they raised over $347.00 WOW! To date Eli and Austin have raised over $1,400.00 in their fight against childhood cancer. These boys are great; they understand what they are doing in this fight. Ruth and I are so proud of them both. Eli receives his daily chemo med’s from Ruth or I, and his next clinic visit is June 20th. Please keep our little guy close to your thoughts, and prayers. Love the Matthews family. Go check out the photo gallery and enjoy the new photos. Eli had to have those ape hangers on his Harley. That’s my boy.
ParrotHead 10th June 2008, 03:05 Saturday June 14th 10:00 a.m. – 1:00 p.m. Cameron’s Hardware
Saturday June 14th 4:00 p.m. – 8:00 p.m. Nottingham Inn car show
Could get addresses for these? I'm thinking lemonade would taste good this weekend.
Panther 10th June 2008, 03:20 Could get addresses for these? I'm thinking lemonade would taste good this weekend.
Cameron's True Value Hardware
2195 Baltimore Pike
Oxford, PA 19363
Website | 610-932-2416
Nottingham Inn
190 Baltimore Pike
Nottingham, PA 19362
Website | 610-932-4050
If you get lost call my cell at 610-207-4227. The car show will be GREAT!! good food and everything. We hope to see you.
Brad 10th June 2008, 10:17 Could get addresses for these? I'm thinking lemonade would taste good this weekend.
If I get my bike back, I might make the run too. I'll let you know as the week goes on.
Panther 14th June 2008, 03:34 6/13/2008
Hi friends, and family. WOW school is out!Eli is now a second grader, and Austin is a sixth grader. We are so very proud of our boys, for how well they have done. Eli has been through so much during this school year that it amazes Ruth and I as well as his teachers on how well he really did. On Saturday the 14th we will be at Cameron's Hardware from 10:00 am till 1:00 pm with the Eli and Alex's Lemonade stand. We will also be at the Nottingham Inn from 4:00 pm till 8:00 pm with the stand to help raise money in this fight against childhood cancer. Please join us if you can. Love the Matthews family.
Brad 14th June 2008, 03:42 Planning on the Nottingham Inn. As always, weather may prevent the trip, but not the donation!
Panther 16th June 2008, 17:59 Planning on the Nottingham Inn. As always, weather may prevent the trip, but not the donation!
Well the weather did not prevent your trip, and it was nasty out:hidechai Well this is the closest thing I could find to hiding under a tree :laugh it's wood at least:doh
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